Preferences in Receiving Clinical Trials Information of Asian, Native Hawaiian, and Pacific Islander Patients With Type 2 Diabetes Mellitus

Author(s)

Sentell T1, Taira D2, Tengan K2, Takata J2, Porter CO2, Ranken MS2, Suzuki M3, Hsieh J4, Lee CS5, Seto TB2
1Office of Public Health Studies, University of Hawaii at Manoa, Honolulu, HI, USA, 2The Queen's Medical Center, Honolulu, HI, USA, 3US Food and Drug Administration, Silver Spring, MD, USA, 4US FDA, Silver Spring, MD, USA, 5U.S. FDA, White Oak, MD, USA

OBJECTIVES: Asian Filipino, Native Hawaiian (NH), and Pacific Islander (PI) populations are often underrepresented in clinical trials. To increase diversity in clinical trials, effective communication channels need to be established. The goal of this study was to examine how these populations want to receive information on clinical trials.

METHODS: For this descriptive study, in-person semi-structured interviews were conducted in English for a convenience sample of patients with type 2 diabetes mellitus who were hospitalized at a large medical center in Hawaii [Asian Filipino n=15; NH n=16; PI n=15].

RESULTS: Approximately 58% were aged 40 to 64; 30% were aged 65 and older; and 39% were female. Overall, 86% of patients reported wanting to receive information about clinical trials for which they might be eligible. Among Asian Filipino patients, 80% said they wanted clinical trial information to come from their physicians; 67% through physical mail; 53% via texts; 53% via emails. Among NH, 53% wanted clinical trial information from their physicians; 53% via texts; 41% through physical mail. Among PI, 50% said they wanted to receive clinical trial information from their physicians; 50% via texts; 50% via emails. Receiving information from churches and newspapers were the least preferred ways to reach clinical trial participants.

CONCLUSIONS: For all respondents, nearly 90% of patients wanted to receive clinical trial information. Most wanted the information from their physicians. In addition, texts and physical mail were often cited as preferred communication modes.

Conference/Value in Health Info

2024-11, ISPOR Europe 2024, Barcelona, Spain

Value in Health, Volume 27, Issue 12, S2 (December 2024)

Code

PCR68

Topic

Patient-Centered Research

Topic Subcategory

Patient Behavior and Incentives, Patient Engagement

Disease

Diabetes/Endocrine/Metabolic Disorders (including obesity), No Additional Disease & Conditions/Specialized Treatment Areas

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