Patient Council
This Council facilitates communication around issues related to patient engagement in healthcare research.
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Special Interest Groups
- Biosimilars
- Clinical Outcome Assessment
- Digital Health
- Health Preference Research
- Medical Devices and Diagnostics
- Medication Adherence and Persistence
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Nutrition Economics
- Oncology
- Open Source Models
- Patient-Centered
- Personalized / Precision Medicine
- Rare Disease
- Real-World Evidence (RWE)
- Statistical Methods in HEOR
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Task Forces
- Machine Learning Methods in HEOR
- Measurement Comparability Between Modes of Administration of PROMs
- Performance Outcome (PerfO) Assessments
- Systematic Reviews with Cost and Cost-Effectiveness Outcomes
- Value Assessment Frameworks Special Task Force
- Value of Information Analysis for Research Decisions
- Joint ISPE-ISPOR Special Task Force
- Councils & Roundtables
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Global Groups
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Consortia
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Asia Consortium
- Asia Consortium Founding Members
- Asia Consortium Executive Committee
- Asia Consortium Advisory Committee
- Asia Pacific Conference Committee
- Asia Consortium Education Committee
- Asia Consortium Publication Committee
- Asia Consortium Industry Committee
- Asia Consortium HTA Agencies Committee
- HealthNetIndia
- Central & Eastern Europe Consortium
- Latin America Consortium
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Asia Consortium
- Networks
- Regional Chapters
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Join an ISPOR Global Member Group
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Consortia
- Students
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New Professionals
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Professional Development Resources
- Good Practices for HTA - What is out there and how do I use it
- ISPOR & AACP Joint Webinar – “Tips for Securing a Post-Doctoral Fellowship”
- You Are Creative: Research is the First Step
- AMCP eDossier System @ FormularyDecisions.com Demo and Practical Application
- Good Practices for a Successful Job Search
- Leveraging The Power Of LinkedIn
- Internships & Fellowships: Career Opportunities for the Future
- My Career Path
- Career Advice Across the Globe
- "My ISPOR Story" - Zeba Khan
- "My ISPOR Story" - Lou Garrison
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Professional Development Resources
Background
ISPOR has been committed to engaging patients as a key constituency since 2012 when the Society first invited patient representatives to participate in the Health Technology Assessment (HTA) Roundtable held during their 17th Annual International Meeting. The Society launched its Patient Representatives Roundtables initiative at its 2013 Annual European Congress. Since then, ISPOR has held annual Patient Representatives Roundtables in North America and Europe. The Society hosted its first Patient Roundtable in Latin America in September 2017 and is planning its first for Asia-Pacific in 2018. The Society introduced a patient membership category in 2015 that includes special member benefits, such as discounted membership and conference registration rates and travel grants. ISPOR also has established a Patient Centered Special Interest Group that has an active working group on Patient Engagement in Research.
Mission
The mission of the Patient Council is to facilitate communication regionally among patient representatives, creating a global network for discussion, consensus building, and experience sharing around issues related to patient engagement in healthcare research.
Objectives
- Serve as an advisory group to the ISPOR Board of Directors
- Build a ‘network’ to support regional ISPOR Roundtables and to share issues and recommendations
- Understand research issues and concerns of patients globally
- Contribute to the development and implementation of patient initiatives
- Maintain a pipeline of patient representatives to support ISPOR’s activities such as ISPOR committees, task forces, special interest groups, and regional consortia, chapters, and networks
Patient Representative Membership and Conference Travel Grants
Patient representatives are eligible for a special membership rate and travel grant opportunities for ISPOR conferences.
For More Information
Please contact us for information about the Patient Council or other patient initiatives.