To facilitate the involvement of patient representatives in all stages of research and decision making to improve healthcare, its delivery, and outcomes.


Patients are a distinct stakeholder group. Outcomes research is rapidly evolving and major changes are already being implemented. One common feature is the agreed consensus on the importance to obtain the input of patients in all processes in the value assessments of medicines for society.



Jessica Roydhouse, PhD, BA, MPH

Select Foundation Senior Research Fellow in Health Services Research, Menzies Institute for Medical Research, University of Tasmania
Hobart, TAS, Australia

Past Chair

Eleanor Perfetto, MS, RPh, PhD

Professor, University of Maryland Baltimore Pharmaceutical Health Services Research Department
VENICE, FL, United States


Nan Qiao, MSc, PhD, MBBS, MPH

Director, Merck & Co.
Lansdale, PA, United States

Operational Lead

Sam Llewellyn, BSc

Associate Director, Patient Centered Research, Vitaccess
Oxford, OXF, United Kingdom

Working Groups:

Member Engagement

These activities allow for a variety of members to participate and also facilitates disseminating content in Webinars, Journal Clubs, Conference Sessions, etc.


Angie Botto-van Bemden

Patient Partner, Musculoskeletal Research International
Holiday, FL, United States

Prajakta Masurkar, PhD

HEOR Manager, Amgen Inc.
Thousand Oaks, CA, United States

Questions or ideas? Please send an email to patientsig@ISPOR.org

Join this Special Interest Group

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