To facilitate the involvement of patient representatives in all stages of research and decision making to improve healthcare, its delivery, and outcomes.


Patients are a distinct stakeholder group. Outcomes research is rapidly evolving and major changes are already being implemented. One common feature is the agreed consensus on the importance to obtain the input of patients in all processes in the value assessments of medicines for society.

Working Groups:

Key Project

Patient Engagement in Research


  • Rachel Harrington, PhD, Research Scientist, National Committee for Quality Assurance, Washington, DC, USA

Work Products

  1. Qualitative Content Analysis Training Webinar
  2. Patient Engagement in Health Outcomes Research: A Snapshot from the ISPOR Community
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