To facilitate the involvement of patient representatives in all stages of research and decision making to improve healthcare, its delivery, and outcomes.
Patients are a distinct stakeholder group. Outcomes research is rapidly evolving and major changes are already being implemented. One common feature is the agreed consensus on the importance to obtain the input of patients in all processes in the value assessments of medicines for society.
Manuscript and Reports
- Harrington R. L, Hanna M, Oehrlien E.M, et al. Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group. [Editor’s Choice] Value in Health 2020;23(6):677-688
- Camp R, Wheeler R, von Gizycki R, and McBurney, R. From the Patients: Defining Patient Engagement in Research. Value & Outcomes 2020;6(4)
- Harrington, R, Hareendran, A, Scott, A, et al. Patient Engagement in Health Outcomes Research: A Snapshot from the ISPOR Community. Value & Outcome Spotlight 2016;2(5):11-14
Eleanor Perfetto, MS, RPh, PhD
Jessica Roydhouse, PhD, BA, MPH
These activities allow for a variety of members to participate and also facilitates disseminating content in Webinars, Journal Clubs, Conference Sessions, etc.
Prajakta Masurkar, PhD
Nan Qiao, MPH
Questions or ideas? Please send an email to patientsig@ISPOR.org