Goal
The goal of the Patient Representatives Roundtable is to provide a platform for patient representatives to interact with other stakeholders and determine how best to engage patient representatives in the research and decision making processes.
ISPOR Patient Representatives Roundtables
Patient Representatives Roundtable – Asia Pacific
2021 Patient Representatives Roundtable - Asia Pacific
Virtual | 2 November 2021
The Roundtable convened 30 multi-stakeholders from 12 Asia Pacific countries representing chronic and rare disease patient organizations, researchers, health technology assessment bodies, and government agencies. Presentations from Oracle Health and the Lymphoma Coalition highlighted the value and use of digital health for chronic disease management and ways to improve access to care and accelerate health equity. The roundtable attendees discussed lessons learned from the COVID-19 pandemic and how different stakeholders evaluate the value and effectiveness of telemedicine, while incorporating the patient perspective on the benefits and limitations of telemedicine. Read the roundtable summary here.
2020 Patient Representatives Roundtable - Asia Pacific
Virtual | 10 September 2020
The ISPOR Patient Representatives Roundtable-Asia Pacific was held virtually on 10 September and convened more than 30 participants, including patient representatives, researchers, government and HTA bodies, and the pharmaceutical industry. The Roundtable featured presentations from the Center for Drug Evaluation in Taiwan and the HTA Unit from the Philippines Ministry of Health, as well as discussions on the challenges and opportunities for how to promote patient involvement in healthcare decision making processes in the Asia-Pacific region.
Previous Patient Representatives Roundtables - Asia Pacific
2018 - Tokyo, Japan
Patient Representatives Roundtable – Europe
2022 Patient Representatives Roundtable - Europe
Virtual | 30 November 2022
The Patient Representatives Roundtable - Europe convened virtually on 30 November 2022 and brought together more than 35 representatives from patient organizations, government, HTA bodies and payers, researchers, and industry representatives. Presentations from Irish Platform for Patient Organisations, Science and Industry (IPPOSI) highlighted the history and future direction of the ISPOR Patient Representatives Roundtable – Europe. Presentations from Health Outcomes Strategies GmbH, European Patients' Academy on Therapeutic Innovation (EUPATI), and International Affairs at the Institute for Quality and Efficiency in Health Care (IQWiG) highlighted the evolution of patient involvement in health technology assessment (HTA) and provided an overview of the new EU legal framework on HTA and ways to improve trust between HTA agencies and stakeholders.
2021 Patient Representatives Roundtable - Europe
Virtual | 9 December 2021
2020 Patient Representatives Roundtable - Europe
Virtual | 24 November 2020
The ISPOR Patient Representatives Roundtable–Europe convened on November 24 to discuss the impact of patient-generated evidence and patient-reported outcomes. More than 35 representatives from various patient organizations, research groups, health technology assessment bodies, health technology industry, and regulatory agencies participated in the discussion. Some of the participating organizations included EUPATI, International Alliance of Patient Organizations, IQWIG, NICE, the European Commission and European Medicines Agency.
Previous Patient Representatives Roundtables - Europe
2019 - Copenhagen, Denmark
2018 - Barcelona, Spain
2017 - Glasgow, Scotland, UK
2016 - Vienna, Austria
2015 - Milan, Italy
2014 - Amsterdam, The Netherlands
2013 - Dublin, Ireland
Patient Representatives Roundtable - Latin America
2022 Patient Representatives Roundtable - Latin America
VIRTUAL | 26 JULY 2022
The ISPOR 2022 Patient Representatives Roundtable – Latin America was held on 26 July 2022. More than 30 representatives convened to discuss effective social participation in health technology assessment (HTA) and mapping the patient journey in the process. Speakers from the Unidos Pela Vida | Instituto Brasileiro de Atenção à Fibrose Cística and Institute of Health Technology Assessment – IETS, the Colombian agency of HTA highlighted the impact of patient input on the HTA process from both the patient perspective and the HTA perspective, respectively. Read the Roundtable summary here.
2021 Patient Representatives Roundtable - Latin America
VIRTUAL | 24 SEPTEMBER 2021
On September 24, more than 40 attendees from 13 Latin America countries representing chronic and rare disease patient organizations, academic researchers, clinicians, HTA bodies, and government agencies virtually gathered at the Patient Representatives Roundtable – Latin America to identify how key healthcare stakeholders evaluate the value and effectiveness of digital health, while incorporating the patient perspective on the benefits and limitations of telemedicine. Presentations from the Latin America Pulmonary Hypertension Society and the Fundación SENOSama highlighted how patients can improve skills around digital leadership and digital health and how digital health improve access to care and accelerate equity.
2019 Patient Representatives Roundtable - Latin America
Bogotá, Colombia | 12 September 2019
Held on 12 September in Bogotá, Colombia, the Patient Representatives Roundtable recently convened to discuss the role of patient participation in health technology assessment (HTA), as well as the elements and methodologies necessary to facilitate the participation of all key stakeholders involved in HTA in the Latin America region. Multi-stakeholder representation including participants from Fundación GIST Chile, Psoriasis Association of Argentina, Global Alliance for Patient Access, Ministries of Health from Brazil and Mexico, Instituto de Evaluación en Salud (IETS), AbbVie, and Pfizer were included in the discussion.
Previous Patient Representatives Roundtables - Latin America
- 2018 - Lima, Peru
- 2017 - São Paulo, Brazil
Patient Representatives Roundtable – North America
2023 Virtual Patient Representatives Roundtable - North America
Boston, MA| (Date TBD)
The ISPOR 2023 Patient Representatives Roundtable - North America is expected to take place during ISPOR 2023 in Boston, MA, USA (date is TBD).
2022 Virtual Patient Representatives Roundtable - North America
Virtual|June 8, 2022
More than 45 attendees from patient organizations and other key stakeholders convened on June 8 to discuss useful and fit-for-purpose patient registries and patient-centered research networks. Presentations from Patient-Centered Outcomes Research Institute (PCORI), National Organization for Rare Disorders (NORD), and the American Institute for Research highlighted research principles and expectations for patient engagement, how to create and maintain a patient registry, and attributes for sustainable partnerships with researchers and patients. This roundtable was co-chaired by Alan Balch, PhD of Patient Advocate Foundation and Lisa J Pieretti, MS, MBA of the International Hyperhidrosis Society.
2021 Virtual Patient Representatives Roundtable - North America
Virtual|May 6, 2021
On May 6, more than 45 attendees from chronic and rare disease patient organizations, researchers, government, payers, and industry virtually gathered at the Patient Representatives Roundtable – North America to identify the needed measures to assess the value and effectiveness of virtual approaches to healthcare. Presentations from the Familial Hypercholesterolemia (FH) Foundation, the Society to Improve Diagnosis in Medicine, and the National Health Council highlighted the barriers and opportunities to telediagnosis and management of diseases through the use of telemedicine and virtual care.
2020 Virtual Patient Representatives Roundtable - North America
Virtual| June 15, 2020
The ISPOR Patient Representatives Roundtable-North America convened virtually on June 15 to discuss incorporating patient-generated health data (PGHD) to inform healthcare decision making related to health technology assessment (HTA), value assessment, pricing, coverage, and reimbursement decisions. More than 45 representatives from various patient organizations, payers and HTA bodies, research organizations, government, and the pharmaceutical industry shared their perspectives; including the Arthritis Foundation, Sick Cells, Blue Cross Blue Shield Association, ICER and US FDA.
Previous Patient Representatives Roundtables - North America
2019 - New Orleans, LA
2018 - Baltimore, MD
2017 - Boston, MA
2016 - Washington, DC
2015 - Philadelphia, PA
For More Information
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