We Hear What You Are Saying: The Development and Design of the Qualitative Interview Feedback Survey (QIFS) for Use in Qualitative Patient-Centered Outcomes Research Studies
Author(s)
Gemma Al-Jassar, MSc1, Katja Rudell, PhD2, Dorsa Khazaei, MSc1.
1Kielo Research, London, United Kingdom, 2Kielo Research, Cambridge, United Kingdom.
1Kielo Research, London, United Kingdom, 2Kielo Research, Cambridge, United Kingdom.
OBJECTIVES: Obtaining participant feedback following a qualitative interview is a valuable way of assessing whether they felt heard and their health condition understood by the interviewer. Research studies have typically explored clinical trial study feedback, but little structured feedback assessments are available to optimise future qualitative data collection in patient-centred outcomes (PCO) research. The literature was reviewed to identify key aspects of participant feedback surveys, and to develop a Qualitative Interview Feedback Survey (QIFS) for use in future studies.
METHODS: A targeted literature review was conducted on PubMed by three researchers using electronic keyword searchers and specific inclusion criteria, to explore the most salient feedback concepts, survey format and items included and used in qualitative interviews or focus groups. The published research was supplemented by relevant grey literature and an internet search of participant feedback forms currently being used in research studies.
RESULTS: A total of 1311 articles were identified, from which 28 articles were included for full-text review. Of these, 20 were reviewed for relevance and concept identification, in addition to nine participant feedback forms identified during the internet search. The following feedback concepts identified included: i. Reasons and/or motivations for participation, ii. Adequacy of pre-study information and scheduling, iii. Compliance with pre-study information, iv. Psychological safety and comfort during the qualitative research, v. Question clarity and study features, vi. Meaningful participation and representation, vii. Satisfaction and feedback, viii. Recommendations for future studies. The survey format was also explored, which identified the importance of considering the length of the survey, time for completion, and response format.
CONCLUSIONS: Based on the findings, a new feedback form was developed (the QIFS) to receive feedback, and improve standardisation and quality of PCO research across the PCO sector.
METHODS: A targeted literature review was conducted on PubMed by three researchers using electronic keyword searchers and specific inclusion criteria, to explore the most salient feedback concepts, survey format and items included and used in qualitative interviews or focus groups. The published research was supplemented by relevant grey literature and an internet search of participant feedback forms currently being used in research studies.
RESULTS: A total of 1311 articles were identified, from which 28 articles were included for full-text review. Of these, 20 were reviewed for relevance and concept identification, in addition to nine participant feedback forms identified during the internet search. The following feedback concepts identified included: i. Reasons and/or motivations for participation, ii. Adequacy of pre-study information and scheduling, iii. Compliance with pre-study information, iv. Psychological safety and comfort during the qualitative research, v. Question clarity and study features, vi. Meaningful participation and representation, vii. Satisfaction and feedback, viii. Recommendations for future studies. The survey format was also explored, which identified the importance of considering the length of the survey, time for completion, and response format.
CONCLUSIONS: Based on the findings, a new feedback form was developed (the QIFS) to receive feedback, and improve standardisation and quality of PCO research across the PCO sector.
Conference/Value in Health Info
2025-11, ISPOR Europe 2025, Glasgow, Scotland
Value in Health, Volume 28, Issue S2
Code
PCR266
Topic
Clinical Outcomes, Methodological & Statistical Research, Patient-Centered Research
Topic Subcategory
Instrument Development, Validation, & Translation, Patient Behavior and Incentives, Patient Engagement, Patient-reported Outcomes & Quality of Life Outcomes
Disease
No Additional Disease & Conditions/Specialized Treatment Areas