The Use of Patient-Reported Experience Measures in Adults With Obstructive Sleep Apnea: A Systematic Evidence Review
Author(s)
Mathias Wollny, MA, MSc1, Marcel Braun, MBA, MSc, PhD2.
1Sr. Director, Market Access (Europe), Inspire Medical Systems, Hamburg, Germany, 2University Hospital Duisburg-Essen, Center for Sleep Medicine, Bonn, Germany.
1Sr. Director, Market Access (Europe), Inspire Medical Systems, Hamburg, Germany, 2University Hospital Duisburg-Essen, Center for Sleep Medicine, Bonn, Germany.
OBJECTIVES: Patient-Reported Experience Measures (PREMs) capture essential aspects of healthcare quality from the patient's perspective. According to the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), PREMs focus on experiences with the healthcare system, including communication, care coordination, shared decision-making, and access to care. This review evaluates the use and methodological quality of PREMs in adult OSA studies and assesses how well existing research aligns with the ISPOR definition.This work also situates PREM use within two decades of growing OSA research in sleep medicine.
METHODS: A systematic search was conducted across PubMed, Scopus, Web of Science, PsycINFO, and Google Scholar, using both MeSH terms and free-text keywords related to OSA and PREM. Eligible studies involved adults and used structured tools to assess patient experience; studies focusing only on PROMs or lacking experiential measures were excluded. The search was restricted to studies published between 2000-2024, in English language. Two independent reviewers conducted screening and full-text assessment following PRISMA 2020 guidelines.
RESULTS: Of the 1,283 records identified, 1,121 unique studies were screened. After full-text review of 98 articles, 16 met all inclusion criteria. Most excluded studies focused on satisfaction or outcome-based metrics without a structured experiential framework. None of the studies applied a validated PREM consistent with ISPOR standards such as HCAHPS or PACIC. Instead, most employed self-designed or narrowly scoped instruments. Core PREM dimensions like communication quality, coordination of care, and patient involvement were rarely assessed.
CONCLUSIONS: There is a significant gap in the application of validated, ISPOR-compliant PREMs in the OSA literature. While PROMs continue to dominate, structured evaluations of care experience are lacking. Future research should prioritize the integration of robust PREM instruments to better capture patient-centered aspects of OSA management. With growing research in sleep medicine, PREMs may guide more patient-centered and sustainable care strategies.
METHODS: A systematic search was conducted across PubMed, Scopus, Web of Science, PsycINFO, and Google Scholar, using both MeSH terms and free-text keywords related to OSA and PREM. Eligible studies involved adults and used structured tools to assess patient experience; studies focusing only on PROMs or lacking experiential measures were excluded. The search was restricted to studies published between 2000-2024, in English language. Two independent reviewers conducted screening and full-text assessment following PRISMA 2020 guidelines.
RESULTS: Of the 1,283 records identified, 1,121 unique studies were screened. After full-text review of 98 articles, 16 met all inclusion criteria. Most excluded studies focused on satisfaction or outcome-based metrics without a structured experiential framework. None of the studies applied a validated PREM consistent with ISPOR standards such as HCAHPS or PACIC. Instead, most employed self-designed or narrowly scoped instruments. Core PREM dimensions like communication quality, coordination of care, and patient involvement were rarely assessed.
CONCLUSIONS: There is a significant gap in the application of validated, ISPOR-compliant PREMs in the OSA literature. While PROMs continue to dominate, structured evaluations of care experience are lacking. Future research should prioritize the integration of robust PREM instruments to better capture patient-centered aspects of OSA management. With growing research in sleep medicine, PREMs may guide more patient-centered and sustainable care strategies.
Conference/Value in Health Info
2025-11, ISPOR Europe 2025, Glasgow, Scotland
Value in Health, Volume 28, Issue S2
Code
PCR244
Topic
Health Service Delivery & Process of Care, Methodological & Statistical Research, Patient-Centered Research
Topic Subcategory
Instrument Development, Validation, & Translation
Disease
Respiratory-Related Disorders (Allergy, Asthma, Smoking, Other Respiratory)