Impact of Cancer on the Burden of Caregiving in China, Japan, and EU5: National Health and Wellness Survey
Author(s)
Amanda Woo, PhD1, Lawrence Vandervoort, Master’s in Public Health (MPH)1, Neeyor Bose, PhD1, Nikoletta Sternbach, BA2, Maria Choufany, PhD3, Leila Alaoui Sosse, Masters3, Shaloo Gupta, MS2.
1Oracle Life Sciences, Singapore, Singapore, 2Oracle Life Sciences, Austin, TX, USA, 3Oracle Life Sciences, Paris, France.
1Oracle Life Sciences, Singapore, Singapore, 2Oracle Life Sciences, Austin, TX, USA, 3Oracle Life Sciences, Paris, France.
OBJECTIVES: Caregivers often face a substantial burden, yet their own well-being is frequently overlooked, especially when they are experiencing a serious illness themselves. This study aims to estimate the additional burden experienced by caregivers with cancer compared to caregivers without any self-reported condition across China, Japan, and EU5.
METHODS: This cross-sectional, web-based survey study used existing data from the National Health and Wellness Survey (NHWS) conducted China (n=20,001), Japan (n=30,001), and the EU5 (France, Germany, Italy, Spain, United Kingdom) (n=62,022) among adults aged ≥18 years. Eligible respondents who cared for any adult and/or children were included if they have self-reported cancer diagnosis (caregivers with cancer) or do not have any self-reported condition (caregivers without conditions). Demographic characteristics, health-related quality of life (health state EQ-5D, anxiety, depression), and work productivity and activity impairment (WPAI) were reported descriptively for each region.
RESULTS: Caregivers with cancer in China, Japan, and EU5 displayed worse health state than caregivers without conditions. A higher proportion of caregivers with cancer exhibited symptoms of anxiety GAD-7 score of ≥10: China: 45.6% vs. 13.5%; Japan: 16.9% vs. 12.6%; EU5: 36.5% vs. 13.5%; and depression PHQ-9 score of ≥10: China: 63.2% vs. 33.7%; Japan: 27.0% vs. 16.1%; EU5: 44.6% vs. 32.5%. Employment among caregivers with cancer was lower than caregivers without conditions (China: 61.8% vs.85.4%; Japan: 44.9% vs. 71.3%; EU5: 55.1% vs. 82.1%). Total work productivity impairment among caregivers with cancer was ~2-times higher in China, 1.3-1.8 times in Japan, and ~1.4-1.8 times in EU5, than caregivers without conditions.
CONCLUSIONS: This study highlighted the amplified burden of having cancer while being a caregiver with notable variations across China, Japan, and EU5. The findings indicate an urgent need for targeted and robust support systems to mitigate this dual burden and improve the well-being of this vulnerable population.
METHODS: This cross-sectional, web-based survey study used existing data from the National Health and Wellness Survey (NHWS) conducted China (n=20,001), Japan (n=30,001), and the EU5 (France, Germany, Italy, Spain, United Kingdom) (n=62,022) among adults aged ≥18 years. Eligible respondents who cared for any adult and/or children were included if they have self-reported cancer diagnosis (caregivers with cancer) or do not have any self-reported condition (caregivers without conditions). Demographic characteristics, health-related quality of life (health state EQ-5D, anxiety, depression), and work productivity and activity impairment (WPAI) were reported descriptively for each region.
RESULTS: Caregivers with cancer in China, Japan, and EU5 displayed worse health state than caregivers without conditions. A higher proportion of caregivers with cancer exhibited symptoms of anxiety GAD-7 score of ≥10: China: 45.6% vs. 13.5%; Japan: 16.9% vs. 12.6%; EU5: 36.5% vs. 13.5%; and depression PHQ-9 score of ≥10: China: 63.2% vs. 33.7%; Japan: 27.0% vs. 16.1%; EU5: 44.6% vs. 32.5%. Employment among caregivers with cancer was lower than caregivers without conditions (China: 61.8% vs.85.4%; Japan: 44.9% vs. 71.3%; EU5: 55.1% vs. 82.1%). Total work productivity impairment among caregivers with cancer was ~2-times higher in China, 1.3-1.8 times in Japan, and ~1.4-1.8 times in EU5, than caregivers without conditions.
CONCLUSIONS: This study highlighted the amplified burden of having cancer while being a caregiver with notable variations across China, Japan, and EU5. The findings indicate an urgent need for targeted and robust support systems to mitigate this dual burden and improve the well-being of this vulnerable population.
Conference/Value in Health Info
2025-11, ISPOR Europe 2025, Glasgow, Scotland
Value in Health, Volume 28, Issue S2
Code
PCR128
Topic
Patient-Centered Research
Topic Subcategory
Patient-reported Outcomes & Quality of Life Outcomes
Disease
No Additional Disease & Conditions/Specialized Treatment Areas