Use of Personalized Migraine Summary Reports in a Symptom Tracking Program to Support Migraine Self-Management
Author(s)
Christian Cerrada, PhD, Andrea Mooney, MPH, Abigail Levine, PhD, Ernesto Ramirez, PhD;
Evidation Health, San Mateo, CA, USA
Evidation Health, San Mateo, CA, USA
Presentation Documents
OBJECTIVES: Migraine symptom tracking is considered an important strategy for helping individuals better understand their migraine and for improving communication with healthcare providers about treatment options. We describe how personalized migraine summary reports generated from daily diaries enable migraine self-management and explore predictors of using them.
METHODS: 1,975 US adults from an online health community enrolled in a symptom tracking program (MigraineSmart) consisting of daily diaries about migraine occurrence, severity, and medication use and also completed a follow-up survey 180 days later. MigraineSmart was designed to promote long-term engagement using tailored diary completion reminders, educational articles, and personalized summary reports of participants' survey responses and connected wearable data. Predictors of self-reported use of the reports for migraine management were explored using multivariable logistic regression.
RESULTS: After 180 days, 1,522 (77%) respondents reported being very or extremely satisfied with the reports and 899 (46%) reported using them for migraine management. Among those who did, the most common uses were to help identify triggers (53%) and to understand the impact of treatment on symptoms (38%). Participants additionally used reports to talk to their healthcare provider about their symptoms (28%) and to talk about changing their treatment plan (16%). Respondents were highly engaged with tracking (mean (sd) diaries = 22.4(9.1)). The number of daily diaries completed in the first 30 days was associated with subsequent use of reports for migraine management (odds ratio = 1.03, p<.001).
CONCLUSIONS: Personalized migraine summary reports provide feedback to users about the frequency, contexts, and impact of their symptoms on everyday life, which supports self-management and communication with healthcare providers. Promoting early engagement with symptom tracking may help to maximize the usefulness of these reports. Future work aims to quantify engagement levels needed to support migraine management across key subgroups and to evaluate strategies for decreasing tracking burden.
METHODS: 1,975 US adults from an online health community enrolled in a symptom tracking program (MigraineSmart) consisting of daily diaries about migraine occurrence, severity, and medication use and also completed a follow-up survey 180 days later. MigraineSmart was designed to promote long-term engagement using tailored diary completion reminders, educational articles, and personalized summary reports of participants' survey responses and connected wearable data. Predictors of self-reported use of the reports for migraine management were explored using multivariable logistic regression.
RESULTS: After 180 days, 1,522 (77%) respondents reported being very or extremely satisfied with the reports and 899 (46%) reported using them for migraine management. Among those who did, the most common uses were to help identify triggers (53%) and to understand the impact of treatment on symptoms (38%). Participants additionally used reports to talk to their healthcare provider about their symptoms (28%) and to talk about changing their treatment plan (16%). Respondents were highly engaged with tracking (mean (sd) diaries = 22.4(9.1)). The number of daily diaries completed in the first 30 days was associated with subsequent use of reports for migraine management (odds ratio = 1.03, p<.001).
CONCLUSIONS: Personalized migraine summary reports provide feedback to users about the frequency, contexts, and impact of their symptoms on everyday life, which supports self-management and communication with healthcare providers. Promoting early engagement with symptom tracking may help to maximize the usefulness of these reports. Future work aims to quantify engagement levels needed to support migraine management across key subgroups and to evaluate strategies for decreasing tracking burden.
Conference/Value in Health Info
2025-05, ISPOR 2025, Montréal, Quebec, CA
Value in Health, Volume 28, Issue S1
Code
PCR213
Topic
Patient-Centered Research
Topic Subcategory
Patient Behavior and Incentives
Disease
SDC: Neurological Disorders