The Impact of Information and Under-Information on Quality of Life in People With Polycystic Ovary Syndrome

Author(s)

Dóra Szokolai, BSc1, Imre Boncz, MSc, PhD, MD2, Melinda Kóró, MSc1, Réka Vajda, PhD2, Patricia Szántóri, MSc1;
1University of Pécs, Faculty of Health Sciences, Institute of Human Nutrition and Dietetics, Pécs, Hungary, 2University of Pécs, Faculty of Health Sciences, Institute for Health Insurance, Pécs, Hungary
OBJECTIVES: Polycystic ovarian syndrome (PCOS) affects 8-21% of women in their reproductive age. The aim of our study was to assess if awareness and lack of awareness about the illness has an impact on the quality of life and health behaviours of those affected, furthermore, if socio-demographic factors have an impact on informedness.
METHODS: We conducted a quantitative cross-sectional study of women diagnosed with PCOS (n = 115) using an anonymous questionnaire survey. The questionnaire consisted of self-administered questions, including questions about socio-demographic data, sources of information and informedness, health behaviours, food habits (FFQ) and symptoms. Data analysis was performed using descriptive (absolute and relative prevalence, mean, deviation) and mathematical (correlation analysis, χ2 test) at 95% probability (p<0.05).
RESULTS: After assessing informedness using a scale, we determined that higher awareness was associated with a higher education level (p=0.009), living in a higher populated area (p=0.002), better perceived illness management (p<0.001), lower symptom severity (p=0.019) and lower associated mental health effects (p=0.028). Most responders acquire information from social media (33.9%), 64.3% follow a diet, 86.9% take supplements and 40.9% are physically inactive. Most individuals were classified as medium risk (62.6%), only 3 were classified as high risk. We did not find any significant correlations in relation to risk behaviour. Out of all symptoms, infertility had the biggest mental health effect (n = 59).
CONCLUSIONS: The results of this study show that higher awareness affects symptoms and illness management positively. Presumably, education level and place of living have an effect on acquiring appropriate informedness. Appropriate health behaviour is not by all means enough to treat this condition, sometimes other methods might be needed (supplementation, medication).

Conference/Value in Health Info

2025-05, ISPOR 2025, Montréal, Quebec, CA

Value in Health, Volume 28, Issue S1

Code

PCR70

Topic

Patient-Centered Research

Topic Subcategory

Patient Behavior and Incentives, Patient-reported Outcomes & Quality of Life Outcomes

Disease

SDC: Mental Health (including addition), SDC: Reproductive & Sexual Health, STA: Nutrition

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