Exploring the Health and Well-being of Pediatric Caregivers within Chinese Cultural Contexts: A Systematic Review of Qualitative Studies from Chinese Databases
Author(s)
Dai-Ling Sie, MS, M.Sc1, Tzu Wang, B.S2, Lin Ting-Yu, B.S1, Chen-Yu Tung, B.S1, Hsiao-Hsuan Hsu, B.S1, Chu-Hsin Chen, B.S1, Yen-Ming Huang, PhD2, Hsiang-Wen Lin, MS, DrPH, DPhil, PhD1;
1China Medical University, Taichung City, Taiwan, 2National Taiwan University, Taipei City, Taiwan
1China Medical University, Taichung City, Taiwan, 2National Taiwan University, Taipei City, Taiwan
OBJECTIVES: Health-related quality of life (HRQOL) varies across culture contexts, yet the specific dimensions and effects of HRQOL on pediatric caregivers within Chinese culture contexts remain insufficiently understood. This study aimed to perform a systematically review qualitative studies from Chinese databases to explore caregivers’ health and well-being in relation to their roles in caring for sick children.
METHODS: A systematic review was conducted using a structured search strategy to identify qualitative studies written in Simplified or Traditional Chinese characters that addressed caregiver burden related to quality of life or well-being in pediatric care. The search was performed in two Chinese databases, the Airiti Library and the Wanfang Database from inception to October 2024. The review focused on eligible studies conducted in China or Taiwan. Two independent reviewers conducted the search, screening, and data extraction processes, incorporating random cross-validation to ensure consistency. Relevant quotes and texts were translated into English using ChatGPT 4.0 and organized in Microsoft Excel. Data management was facilitated using ATLAS.ti, and deductive content analysis was performed to identify themes and subthemes informed by the EQ Health and Wellbeing (EQ-HWB) conceptual model.
RESULTS: From 40 identified articles, 11 themes emerged, whereas conservatism, family or social relationships, parenting, financial strain, and cognition shows variation from the preliminary findings of the EQ-HWB study. Among the 48 classified subthemes, several (e.g., doubt, shame, resignation, excessive concern, cognitive bias, and reasoning errors) highlighted the complex interplay of themes, such as feelings and emotions, conservatism, family relationships, and cognition within the Chinese cultural context.
CONCLUSIONS: The findings underscore the complex and multifaceted factors influencing the HRQOL of pediatric caregivers within Chinese cultural contexts. Future research should delve deeper into the cultural nuances and interconnections that shape resilience and coping strategies, ultimately impacting caregivers’ health and well-being.
METHODS: A systematic review was conducted using a structured search strategy to identify qualitative studies written in Simplified or Traditional Chinese characters that addressed caregiver burden related to quality of life or well-being in pediatric care. The search was performed in two Chinese databases, the Airiti Library and the Wanfang Database from inception to October 2024. The review focused on eligible studies conducted in China or Taiwan. Two independent reviewers conducted the search, screening, and data extraction processes, incorporating random cross-validation to ensure consistency. Relevant quotes and texts were translated into English using ChatGPT 4.0 and organized in Microsoft Excel. Data management was facilitated using ATLAS.ti, and deductive content analysis was performed to identify themes and subthemes informed by the EQ Health and Wellbeing (EQ-HWB) conceptual model.
RESULTS: From 40 identified articles, 11 themes emerged, whereas conservatism, family or social relationships, parenting, financial strain, and cognition shows variation from the preliminary findings of the EQ-HWB study. Among the 48 classified subthemes, several (e.g., doubt, shame, resignation, excessive concern, cognitive bias, and reasoning errors) highlighted the complex interplay of themes, such as feelings and emotions, conservatism, family relationships, and cognition within the Chinese cultural context.
CONCLUSIONS: The findings underscore the complex and multifaceted factors influencing the HRQOL of pediatric caregivers within Chinese cultural contexts. Future research should delve deeper into the cultural nuances and interconnections that shape resilience and coping strategies, ultimately impacting caregivers’ health and well-being.
Conference/Value in Health Info
2025-05, ISPOR 2025, Montréal, Quebec, CA
Value in Health, Volume 28, Issue S1
Code
PCR61
Topic
Patient-Centered Research
Topic Subcategory
Patient-reported Outcomes & Quality of Life Outcomes
Disease
SDC: Pediatrics