To develop good practices for outcomes research in the study design and utilization of genomics involved in personalized/precision medicine.


The term "personalized medicine" is often described as providing "the right patient with the right drug at the right dose at the right time. More broadly, personalized medicine (also known as precision medicine) may be thought of as the tailoring of a medical treatment to the individual’s characteristics, needs, and preferences during all stages of care, including prevention, diagnosis, treatment, and follow-up.


Emily Reese, PhD MPH

Director, Translational Research, Levine Cancer Institute
Charlotte, NC, United States

Molly Purser, MBA BS PhD

Associate Director, Health Economics, RTI-Health Solutions
Durham, NC, United States

Working Groups:

Key Project

Being precise about precision medicine: What should value frameworks incorporate to address precision medicine? - A report of the Personalized Precision Medicine Special Interest Group
Submitted to Value in Health

Real-world evidence to address uncertainty for transformative and curative therapies


  • Eric Faulkner, MPH, Vice President, Real World Value and Strategy, Executive Director, Precision and Transformative Medicine Center of Excellence, Evidera
  • Sue Zelt, DrPH, Principal and consultant, Cere Health Research

Member Engagement:

Journal Club

We will hold 4 meetings each year. Each journal club will commence with a brief overview of the article by the author, followed by a moderated discussion of the article.


  • Melanie D. Whittington, PhD, Research Assistant Professor, Department of Clinical Pharmacy, Skaggs School of Pharmacy and Pharmaceutical Sciences, University of Colorado Anschutz Medical Campus, Aurora, CO, USA

November 15 at 11:00 AM EDT “A Strategy to Support Efficient Development and Use of Innovations in Personalized Medicine and Precision Medicine” by Garrison and Towse

Others TBD

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