Objectives: As the impact of stroke continues, the number of people who require rehabilitation will also increase. This research aims to describe the epidemiological profile of individuals with stroke in a population assisted within the Family Health Strategy in Brazil.

Methods: We used data from a real-world database generated by a free data collection app used by Community Health Workers ( CHW) from May 2015 to January 2021 to identify stroke survivors, and to assess demographics and clinical characteristics. Main clinical data include: type of stroke (ischemic or hemorrhagic), physiotherapy, hospitalization, disability, ability to walk, difficulty speaking, presence of stiffness and use of medication for stiffness.

Results: Among 2,397,764 individuals assisted by CHW that used the app, 21,785 were stroke survivors, representing a 0.9% prevalence. Among this subgroup, the majority were from the Northeast region (50.3%), and 77.7% in urban areas. Most individuals (52.8%) were women, the mean age was 66.5 years, and 4,313 reported physical disability. A significant number of individuals (45%), reported ischemic stroke. Approximately one third of the investigated population (33.1%) reported receiving physiotherapy during hospitalization. Referral to physiotherapy after discharge was informed by 52.7%, and 43.9% reported having undergone physical therapy after discharge. Post-stroke stiffness was reported by 56.2% of individuals. However, 67.1% report ed being able to walk without assistance. Language changes were reported by 38.5%. Among the medications that may be indicated for spasticity, botulinum toxin A was reported by 0.7% of individuals, while the use of baclofen was reported by 0.1%.

Conclusions: We observed that stroke survivors received rehabilitation and referrals, but the level of medication used was very low. As a means of evaluating improvement of the clinical pathway and resources allocation for long term care, the use of large real-world databases may assist in real needs assessments and policy changes.