Making a Difference: Identifying Best Practices to Measure the Impact of Patient Engagement
Author(s)
Pru Etcheverry, ONZM, Advocacy Answers New Zealand, Auckland, New Zealand, Beyza Klein, MA, Novartis, Riehen, BS, Switzerland, Mabel Crescioni, DrPH, JD, Patient-Centered Outcomes Research Institute (PCORI), Washington, DC, USA and Hayley Chapman, MHS, Patient Focused Medicines Development (PFMD), Oakville, Canada
Presentation Documents
This session goes beyond the 'how-to' of engagement, focusing on the crucial aspect of measuring engagement attributes and accomplishments. Delve into the intricacies of determining when and how to measure the quality, quantity, impact, and overall value of patient engagement in research and/or care. Explore the complexities of assessing return on investment and discuss how establishing standards can enhance the credibility of the field. This session will emphasize methods and approaches for gathering evidence that genuinely reflects patient needs and experiences, making research more pertinent to both innovators and patients. While there is some consensus on what defines 'good' or 'bad' engagement, the need for assessment standards will be considered. The importance of measuring the impact of patient-centered evidence on shaping clinical practices and influencing healthcare policies will also be discussed.
Conference/Value in Health Info
2024-05, ISPOR Patient-Centered Research Summit 2024, Atlanta, GA, USA
Topic
Patient-Centered Research