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Value & Outcomes Spotlight is an ISPOR publication for the global HEOR community. Value & Outcomes Spotlight provides enhanced content on health policy and methodological issues and independent contributions from the field, as well as the scientific program of ISPOR Annual Meetings/Congresses/Regional Conferences, plus ISPOR news from around the world.

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Current Issue:

Value & Outcomes Spotlight
May/June 2018 Vol. 4, No. 3
Value and Outcomes Spotlight May/June 2018

The “Patient’s Voice in Healthcare” is the theme of this issue, with six articles focusing on three topics: the patient’s voice, patient engagement, and rare diseases. Aspect of these articles include research and product development, research networks, development of orphan drugs, and equity issues in drug pricing in Europe. In particular, the engagement section describes details on ISPOR’s 2017 Patient Representatives Roundtable–North America, where invitees provide the value of patient engagement being hampered by lack of clarity on the concept and lack of consensus on an evaluation structure.

Also in this issue, it is ISPOR President Shelby Reed’s turn in our “Speaks” section, in which she touches on the transformation of the Society, specifically focusing on our Health Policy Science Council, top 10 HEOR trends, and our Women in HEOR initiative. This issues’ “Corner” includes its usual HEOR News and Research Round-Up, as well as ISPOR Asia Pacific 2018 Co-Chairs Takashi Fukuda and Shinya Saito, who provide us a glimpse of this year’s AP conference and what our host city Tokyo has to offer.

Finally, we publish a Q&A with Clark Paramore and Jennifer Helfer, who discuss rare diseases and the impact specifically on patients.

We hope you enjoy this issue of Value & Outcomes Spotlight! As always, we welcome your feedback and encourage you to email us at

David Thompson, PhD
Value & Outcomes Spotlight Editor-in-Chief