Circumstances of Hospital Care of Autistic Children in Hungary from Parental Perspectives

Author(s)

Peter M1, Szunomár S2, Turcsán J2, Wirthné-Gyergyák K2, Far G2, Kovács A2, Stromájer-Rácz T3, Pakai A4, Boncz I2, Takács K2
1University of Pécs, Budapest, PE, Hungary, 2University of Pécs, Pécs, Hungary, 3University of Pécs, Kaposvár, Hungary, 4University of Pécs, Pécs, ZA, Hungary

Objective: Hospital staff have to face challenges when an autistic child needs the hospital care. Researches on better understanding of the special needs of children with Autism Spectrum Disorder (ASD) helps us to reflect on hospital care and ways to improve them in order to meet up with the demands of the autistic children and their parents.

Method: Cross-sectional, quantitative, qualitative questionnaire-based study was performed in Hungary, January-March 2021. Parents (n=70) of children/youth with ASD (aged 1-21) who stayed more than 1 day in hospital were included. Self-designed online questionnaire was distributed among parents to reveal the parents’ view about the hospital care. Convenience-sampling method were used for data acquisition. Statistics were performed with IBM SPSS 24.0. Confidence interval was determined 95% (p≤0.05).

Results: The highest proportion of children were hospitalized in internal medicine department (37%). 48.5% of parents were satisfied with the hospital care. Parents were significantly not as satisfied with the care of regional hospitals as they were with hospitals in central Hungary (p=0.016). Factors were identified that are considered important by parents during the hospital care and are least fulfilled such as short waiting times (2.43) and qualified hospital staff (2.46). None of the children got special wristband which is used in abroad to indicate the child’s specific status and help the work of the staff. Parents (95.7%) would welcome a short questionnaire on arrival to the hospital, in which the aim is to gather knowledge about their child to promote proper hospital care.

Conclusions: Hospitals in Hungary should strive to improve care for children with ASD. Education of the nurses is a baseline factor. Furthermore, implementation of the internationally used ASD specific protocols must be a priority for hospitals to achieve a good care for autistic children.

Conference/Value in Health Info

2022-05, ISPOR 2022, Washington, DC, USA

Value in Health, Volume 25, Issue 6, S1 (June 2022)

Code

PCR155

Topic

Patient-Centered Research

Topic Subcategory

Patient-reported Outcomes & Quality of Life Outcomes

Disease

No Additional Disease & Conditions/Specialized Treatment Areas

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