Incorporating Patient, Family, and Public Perspectives to Advance Novel and Societal Elements of Value in Value Assessment
Moderator
Richard Xie, PhD, RA Capital Management, Newton, MA, United States
Speakers
Meng Li, MS, PhD, Tufts Medical Center, Boston, MA, United States; Julia F. Slejko, PhD, University of Maryland Baltimore, Baltimore, MD, United States; Jingyan Yang, DrPH, Pfizer Inc., New York, NY, United States
PURPOSE:
Interest in expanding value and health technology assessments (V/HTAs) to incorporate novel elements of value in the broader societal perspective (e.g., option value, family/caregiver spillover) has grown rapidly. However, theoretical and methodological progress has outpaced the generation of patient-, family-, and stakeholder-informed evidence to support the integration of these elements of value in V/HTAs. This workshop will feature proof-of-concept applications to illustrate how incorporating diverse stakeholder perspectives can strengthen the development, prioritization, and application of novel value elements in V/HTAs.
DESCRIPTION:
Workshop attendees will gain practical insight into approaches for integrating diverse stakeholder perspectives in operationalizing broader value elements. Dr. Yang will present how stakeholder inputs—spanning families, school personnel, and community members —informed the development and implementation of a societal value framework for pediatric vaccination, using COVID and flu as examples (10 minutes). Dr. Li will present results from a national survey of cancer patients and caregivers assessing preferences related to preserving access to future innovations, demonstrating how stakeholder-derived evidence can inform the use of option value in V/HTAs (10 minutes). Dr. Slejko will present research on U.S. public preferences related to equity and findings from a multistakeholder eDelphi study that can guide recommendations on methods and needs for patient-centered V/HTAs (15 minutes). Finally, Dr. Xie will synthesize and discuss the practical strategies of incorporating stakeholder input in operationalizing novel elements of value in V/HTAs, and potential implications for patient welfare.
Audience participation will include live polling, Q&A, and facilitated brainstorming on where patient and stakeholder input is most valuable and how these perspectives can be incorporated into the development and quantification of broader value elements (20 minutes).
Topic
Economic Evaluation, Methodological & Statistical Research, Patient-Centered Research