Session (CTI)

PURPOSE: The PATIENTS Program defines continuous engagement science (CES) as a systematic approach focused on fostering trust and authentic collaboration while ensuring patients’ voices are heard and valued. It emphasizes a measurable approach to sustain ongoing engagement between researchers and patient communities, co-creating innovative solutions. This workshop will describe CES strategies to enhance trustworthiness in health economic and outcomes research (HEOR) studies among patients, the public and other decision-maker communities. It will highlight practical methods for integrating patient and community perspectives to develop new solutions. Participants will identify challenges and potential solutions for sustainable, enterprise-wide CES. DESCRIPTION: • DeJuan Patterson, a PATIENTS Professor and credible messenger, will open the session by introducing the Credible Messenger Approach, a framework for leveraging trusted patient advocates and community leaders to enhance participation, build trustworthiness, and foster authentic engagement in HEOR (10 mins). • Dr. O’Sullivan will describe a series of FDA-funded cancer studies where a community advisory board (CAB) of patients, care providers, and researchers co-developed study protocols and guided prioritization of topics and approaches to inform future regulatory studies (10 mins). • Dr. Krohe will discuss how CES and active integration of the patient perspective in decisions during drug development and delivery can be transformative and improve value in health care across diverse settings and populations (10 mins). • The audience will participate in two hands-on exercises (20 mins). The first exercise guides identifying patients, credible messengers, and community influencers to serve as CAB members, with a focus on how their unique perspectives enhance participation and engagement. The second exercise demonstrates how patient engagement can help to avoid medicine development failures and improve uptake of novel therapies, with examples.