IMPACT OF CHILDREN’S SKIN DISEASES ON THEIR PARENTS’ QUALITY OF LIFE
Author(s)
Taïeb C1, Bouissou P2, Nocera T2, Verriere F2, Martincic MA2, Myon E1, 1Pierre Fabre, Boulogne Billancourt, France; 2Laboratoires Dermatologiques Avène, Lavaur, France
Presentation Documents
Skin diseases have a strong impact on the physical and mental well-being of the patient. This is confirmed by the large number of quality of life studies that exist. It is clear that dermatological diseases affect not only the life of the children but also that of his/her family. OBJECTIVES: The Avène Dermatological Hydrotherapy Center, which welcomes over 2500 patients a year, treats an increasing number of children. In most of case, at least one of the parents is present during the hydrotherapy treatments. For a better understanding of the repercussions of the skin disease, we also wanted to assess the quality of life of the parents. METHOD: A generic scale (SF12) and the consequences upon diurnal somnolence (Epworth scale) are completed by the accompanying parent, over a sufficiently long period of time and at regular intervals (Inclusion, 3 weeks -end of hydrotherapy cares-, 3 and 6 months). The completed questionnaires were returned by post. RESULTS: The results consisted of 2 scores: mental (MCS-12) and physical (PCS-12). The norm observed in a standard American population is 50 each dimension. At inclusion, the parents’ scores were: PCS-12=53 and MCS-12=42, showing evidence of a low quality of life score in the mental health dimension compared to the standard American population. This parents’ quality of life score can be compare to the adults patient’s quality of life score assessed in similar condition. For example their mental health dimension score is equivalent to the mental health score of the spouses of patients suffering from benign prostatic hyperplasia. CONCLUSION: Those preliminary results show evidence of the impact on their children dermatologic disease on the parents’ quality of life. Thus appropriate disease management and any treatment which help to reduce the dermatological symptoms of the children could improve their parents’ quality of life.
Conference/Value in Health Info
2002-11, ISPOR Europe 2002, Rotterdam, The Netherlands
Value in Health, Vol. 5, No. 6 (November/December 2002)
Code
PES22
Topic
Patient-Centered Research
Topic Subcategory
Patient-reported Outcomes & Quality of Life Outcomes
Disease
Sensory System Disorders