OBJECTIVES:

The objectives of the study are (1) to define and rank patient outcomes that patients with heart failure (HF) value the most in medical care and (2) to better understand patients’ expectations in terms of care organization and patient support (services and tools).

METHODS:

An observational study was conducted from January to February 2018 via the French Carenity platform, an online patient community. Adult patients with heart failure were invited to complete an online questionnaire. Treatment effectiveness is not assessed in this study.

RESULTS: The aspect of life that both matters the most for patients (ranked 2^nd best, on average) and is the most impacted by heart failure (mean: 3.3/5 with 5 meaning the highest impact) is the ability to be physically active.

Access to innovative treatments and medical devices is one of the most valuable (ranked 2nd best, on average) and at the same time, the least satisfactory elements (mean: 3.1/5 with 5 meaning the highest satisfaction level). Moreover, connected medical devices should be developed because they are highly expected (ranked 2^nd best, on average) and not very accessible (3^rd least accessible, on average). Patients are also moderately satisfied with them (mean: 2.3/5).

Information about scientific news (clinical trials, innovative treatments and devices) is expected (ranked 2^nd best, on average) and quite satisfactory (mean: 2.4/5).

CONCLUSIONS:

Access to innovative medical devices and treatments, especially those that are connected, needs to be improved as they may preserve the ability of patients with HF to be physically active.