OBJECTIVES: The My Migraine Voice survey was conducted to assess migraine characteristics and describe the current real-world burden and impact of living with migraine from clinical, personal, and economic perspectives amongst those with at least 4 monthly migraine days (MMDs). This analysis reports on survey respondents’ demographics, migraine characteristics, use of migraine therapies, and association with other chronic conditions.

METHODS: A worldwide cross-sectional study was conducted using a 30-minute online survey of adults with migraine recruited from 31 countries across Africa, America, Asia and Europe via online panels and patient organizations. To be included, participants had to report >=4 MMDs in the 3 months preceding survey administration (September 2017-February 2018). High-need patients were prioritized by ensuring 90% of respondents had reported prior or current preventive migraine treatment use.

RESULTS: A total of 11,266 individuals with migraine participated (75% female, mean age=39 years). Of all respondents, 47% were employed full-time, 56% married, 63% had children and 54% had migraine family history. Patients had migraine for 11.6 years on average (27% for >20 years), 54% received a diagnosis within 6 months of consulting for their symptoms (19% within >=2 years), and 83% reported taking prescription medications for acute treatment (51% also take OTC drugs). Respondents reported 3.3 other chronic conditions on average (top 3: anxiety, insomnia/sleep disorders, and depression). Impact of migraine on professional, private or social domains was reported by 87% of respondents (51% in all domains).

CONCLUSIONS: A high humanistic and economic burden is associated with migraine as reported in this large worldwide study of more than ten thousands of participants with migraine, the majority of whom have received prophylactic treatment.