PATIENT OUTCOMES IN WALES- THE PROMS, PREMS & EFFECTIVENESS PROGRAMME (PPEP)
Author(s)
Palmer RI, Withers KL, Carolan-Rees G
Cardiff & Vale University Health Board, Cardiff, UK
Presentation Documents
OBJECTIVES: The PPEP is a national programme supported by Welsh Government, Welsh health boards and the NHS Wales Informatics Service, with the aim of providing an electronic platform for data collection across the country. The programme has been funded via the Welsh Government Efficiency through Technology Fund. Its purpose is to make patient-level data available during clinic consultations, and collated data to be analysed for clinical effectiveness assessment and benchmarking. METHODS: Patients are invited to submit PROMs at baseline and post-treatment. Tools are available for completion in English and Welsh, and are currently collected at home via a website or in-clinic via tablet computers. Collected data for all consenting patients include the EQ5D, co-morbidities, BMI, employment status and work productivity impairment, as well as lifestyle information such as smoking history, alcohol intake and exercise levels. Condition-specific tools are in use for 3 conditions, while a further 15 condition specific PROMs and a generic PREMs survey will be available imminently. The platform is currently being piloted in 4 of the 7 health boards in Wales with all consenting responses linked to clinical data. RESULTS: CONCLUSIONS: Such data analyses will facilitate service improvements while informing patient and clinician decision making as part of the prudent healthcare agenda. The platform has allowed large dataset collection in a small space of time, with the programme continuing to capture datasets for chronic and acute conditions across Wales.
Conference/Value in Health Info
2017-11, ISPOR Europe 2017, Glasgow, Scotland
Value in Health, Vol. 20, No. 9 (October 2017)
Code
PHP198
Topic
Patient-Centered Research
Topic Subcategory
Health State Utilities, Patient-reported Outcomes & Quality of Life Outcomes
Disease
Multiple Diseases