FAMILY CAREGIVING IN DEMENTIA AND ITS IMPACT ON QUALITY OF LIFE AND ECONOMIC BURDEN IN JAPAN – WEB-BASED SURVEY
Author(s)
Igarashi A1, Fukuda A1, Teng L1, Ma F2, Dorey J3, Onishi Y4
1University of Tokyo, Graduate School of Pharmaceutical Sciences, Tokyo, Japan, 2Creativ-Ceutical, Beijing, China, 3Creativ-Ceutical, Paris, France, 4Creativ-Ceutical K.K., Tokyo, Japan
OBJECTIVES: Japanese family caregivers play an important role by supporting patients with dementia. However the caregivers’ burden has not been appropriately measured. The study objective was to assess, using validated instruments, the family caregivers’ burden, their quality of life (QOL) and productivity loss. METHODS: An online survey was conducted among family members who lived with dementia patients. Family members were asked to provide information on their QOL (EQ-5D-5L), productivity losses (Work Productivity and Activity Impairment: WPAI), burden of caregiving (ZARIT-8). In addition, monthly medical and nursing cost for their relative with dementia was collected. Standard descriptive statistics and multivariate analyses were conducted to assess factors associated with poorer family caregiver’s QOL and more economic burden. RESULTS: of dementia patients (p<0.01). CONCLUSIONS: Primary caregivers showed higher burden of caregiving and negative impact on their QOL compared to non-primary caregivers. Health policies related to dementia need to be developed not only for dementia patients but also for their family caregivers to improve their QOL and productivity.
Conference/Value in Health Info
2017-11, ISPOR Europe 2017, Glasgow, Scotland
Value in Health, Vol. 20, No. 9 (October 2017)
Code
MH4
Topic
Patient-Centered Research
Topic Subcategory
Patient-reported Outcomes & Quality of Life Outcomes
Disease
Neurological Disorders