BURDEN OF CHRONIC HEART FAILURE ON CAREGIVERS- A MULTINATIONAL CROSS-SECTIONAL SURVEY IN REAL WORLD SETTING
Author(s)
Calado F1, Viriato D2, Proenca CC3, Lahoz R1, Agrawal R4, Cotton S5, Jackson J5
1Novartis Pharma AG, Basel, Switzerland, 2Novartis Farma – Produtos Farmacêuticos S.A., Porto Salvo, Portugal, 3Wellmera AG, Basel, Switzerland, 4Novartis Healthcare Pvt. Ltd., Hyderabad, India, 5Adelphi Real World, Bollington, Macclesfield, UK
OBJECTIVES: To assess the burden of chronic heart failure (CHF) on informal caregivers. METHODS: A cross-sectional survey was conducted across 10 countries (Argentina, Brazil, China, Colombia, France, Japan, Mexico, Russia, Saudi Arabia and Turkey). A total of 563 cardiologists were surveyed to complete patient record forms for 4903 CHF patients. Those patients informal caregivers (n=1316) were invited to complete a caregiver self-completion questionnaire which included the EQ-5D and Heart Failure Caregiver Questionnaire (HF-CQ). RESULTS: The mean (SD) caregiver age was 57.9 (14.0) years. Two-thirds of caregivers were female (67%) and were most commonly either a spouse (64%) or child (24%). Caregivers spent an average of 28 (30.2) hours/week caring for the patient. The mean caregiver EQ-5D utility score was 0.87 (0.19) and moderate to severe anxiety/depression and pain/discomfort was reported by 32% and 29%, respectively. The three most frequent caregiving activities reported were providing emotional support/encouragement to patients (62%), reminding patients to take CHF medication (60%) and help in administering the medicines (44%). On a scale of 0 (best) to 100 (worst), mean emotional and physical wellbeing scores were 30.6 (17.4) and 25.0 (20.7), respectively. Due to caregiving responsibilities, 35% of caregivers suffered from stress, 33% were emotionally drained and 31% were mentally tired. Furthermore, caregiving was reported as being physically tiring and physically hard work for 33% each respectively. Considerable impact on own health (score of ≥5 on a scale of 1-no disruption to 10-severe disruption) was reported by 39% caregivers. Reduced income due to job change or reduction of working hours owing to caregiving responsibilities was reported by 21% caregivers. On average, caregivers accompanied a patient 7 times a year to CHF appointments. CONCLUSIONS: CHF results in substantial burden on informal caregivers and has emotional, mental, physical and financial impact.
Conference/Value in Health Info
2017-11, ISPOR Europe 2017, Glasgow, Scotland
Value in Health, Vol. 20, No. 9 (October 2017)
Code
PCV126
Topic
Patient-Centered Research
Topic Subcategory
Patient-reported Outcomes & Quality of Life Outcomes
Disease
Cardiovascular Disorders