LEVERAGING SOCIAL MEDIA TO EXPLORE PATIENT EXPERIENCES IN NEOVASCULAR AGE-RELATED MACULAR DEGENERATION
Author(s)
Skelly A1, Kommineni J2, Rai N2, Banhazi J3
1Novartis Pharma AG, Basel, Switzerland, 2Novartis Healthcare Pvt. Ltd., Hyderabad, India, 3Novartis Ireland Limited, Dublin, Ireland
OBJECTIVES To assess the disease burden, diagnosis, quality of life, treatment patterns and unmet needs of patients with neovascular age-related macular degeneration (nAMD). METHODS Data between April 2017 and October 2017 were downloaded through Sales Force Social Studio using MeSH terms based on predefined search criteria. Twitter, Blogs, News and Forums were evaluated to identify discussion themes, stakeholders and sentiments in discussions specific to nAMD. After data anonymization, text algorithms and manual categorization were used to analyze and map psychological aspects expressed by stakeholders. RESULTS CONCLUSIONS Low volume of patient discussions on disease understanding necessitates the need for improved availability of disease and treatment information to increase awareness about nAMD in social domains. Delayed diagnosis and the frequency of intravitreal anti-VEGF injections also emerged as key unmet needs.
Conference/Value in Health Info
2018-05, ISPOR 2018, Baltimore, MD, USA
Value in Health, Vol. 21, S1 (May 2018)
Code
PSS21
Topic
Economic Evaluation, Patient-Centered Research
Topic Subcategory
Patient-reported Outcomes & Quality of Life Outcomes, Stated Preference & Patient Satisfaction, Work & Home Productivity - Indirect Costs
Disease
Sensory System Disorders