VIRTUAL CONSULTATION SYSTEM TO ENABLE RARE DISEASES DIAGNOSIS
Author(s)
De Rosa M, Rinaldi E, Ortali M, Covezzoli A
CINECA Interuniversity Consortium, Casalecchio di Reno, Italy
Presentation Documents
Supported by a grant from EU-funded Project ENCCA (European Network for Cancer Research in Children and Adolescents), representatives from SIOPEL, GPOH, COG, and JPLT developed the Virtual Consultation System. VCS is a novel tool developed by Cineca Interuniversity Consortium to support clinical challenges in management of complex cases, which require the consultation among experts coming from different hospitals or countries. VCS allows to assess complex cases using relevant medical information from structured data (e-CRFs) and diagnostic DICOM images.
VCS can be customized according to specific requirements in all of its components such as user roles, process flows, and the input and output information (i.e. e-CRFs, images, consensus form) linked to the different tasks in the review process. RESULTS:
The main output is a report containing the collective findings, conclusions and recommendations for the further treatment of the patient. The use of a web-based consultation system is an essential component of excellence in diseases care because it enables patients to have access to the best available global expertise. This tool is particular important for rare tumors where clinicians need to get consultation from other colleagues in different areas of the world. CONCLUSIONS:
This consultation service represents an opportunity to enhance the care of children with rare tumors and facilitates education of clinicians caring for such challenging patients. Such a consultation service may serve as a model for cooperative management of other rare malignancies.
Conference/Value in Health Info
Value in Health, Vol. 18, No. 7 (November 2015)
Code
PMD121
Topic
Health Service Delivery & Process of Care
Topic Subcategory
Quality of Care Measurement, Treatment Patterns and Guidelines
Disease
Rare and Orphan Diseases