THE FINNISH VERSIONS OF THE LOWER-LIMB SECTIONS OF THE TORONTO EXTREMITY SALVAGE SCORE AND THE MUSCULOSKELETAL TUMOR SOCIETY SCALE- A PILOT STUDY

Author(s)

Repo JP, Kask G, Barner-Rasmussen I, Blomqvist C, Tukiainen EJ
University of Helsinki and Helsinki University Hospital, Helsinki, Finland

OBJECTIVES:   The Finnish language has no function-related cancer-specific outcome measures. The authors translated the Toronto Extremity Salvage Score (TESS) and the Musculoskeletal Tumor Society (MSTS) rating scale into Finnish and pilot tested the versions. METHODS:   Translation and transcultural adaptation was adhered to the guidelines of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Lower-limb TESS and MSTS outcome measures underwent forward-backward translation into Finnish. A multidisciplinary panel reviewed the process and proposed pre-final Finnish versions. Between March and May 2015, altogether 18 consecutive patients who had undergone limb-sparing surgery for lower-extremity soft tissue sarcoma (STS) visited the outpatient clinic of the Helsinki University Hospital Department of Oncology and completed the TESS, while simultaneously undergoing clinical assessment with the MSTS. Participants were interviewed to reveal problems in the translations. RESULTS:  The translation process revealed minor cultural differences between the translations of the TESS, which required adjustments. The MSTS translated well. After evaluating the measurement outcomes, the median TESS and MSTS scores were 85.5% (range, 51.5-100.0%) and 76.7% (range, 26.7-100.0%), respectively. In both outcome measures, the authors noted a 5% ceiling effect. CONCLUSIONS:   The pilot-testing of the Finnish translation of the lower-limb TESS and MSTS indicated a good functional outcome in most patients who underwent lower-extremity limb-sparing surgery for STS. The TESS and the MSTS measurement outcomes correlated relatively closely. The psychometric properties of the Finnish versions of the lower-limb TESS and MSTS warrant further studying.

Conference/Value in Health Info

2015-11, ISPOR Europe 2015, Milan, Italy

Value in Health, Vol. 18, No. 7 (November 2015)

Code

PCN235

Topic

Patient-Centered Research

Topic Subcategory

Patient-reported Outcomes & Quality of Life Outcomes

Disease

Oncology

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