PREDICTORS OF POOR HEALTH-RELATED QUALITY OF LIFE IN PATIENTS WITH EPILEPSY- INSIGHT FROM THE PATIENTSLIKEME® EPILEPSY COMMUNITY

Author(s)

de la Loge C1, Dimova S1, Mueller K2, Durgin T3, Massagli MP4, Wicks P41UCB Pharma, Brussels, Belgium, 2UCB Pharma, Monheim, Germany, 3UCB Pharma, Smyrna, GA, USA, 4PatientsLikeMe, Cambridge, MA, USA

OBJECTIVES: To identify predictors of poor health-related quality of life (HRQoL) in members of the free online PatientsLikeMe Epilepsy Community. METHODS: The PatientsLikeMe Epilepsy Community (launched January 2010) allows patients with epilepsy to record, monitor and share their socio-demographic and disease characteristics, treatments, symptoms, seizure frequency and severity as well as complete Patient Reported Outcomes (PRO) instruments (e.g. QOLIE-31/P, HADS). Univariate and multivariate logistic regressions were performed to identify variables associated with poor HRQoL (

Conference/Value in Health Info

2012-06, ISPOR 2012, Washington, D.C., USA

Value in Health, Vol. 15, No. 4 (June 2012)

Code

PND37

Topic

Patient-Centered Research

Topic Subcategory

Patient-reported Outcomes & Quality of Life Outcomes

Disease

Neurological Disorders

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