PARTICIPATION, SATISFACTION AND KNOWLEDGE LEVEL AMONG PSORIATIC ARTHRITIS AND CUTANEOUS PSORIASIS PATIENTS
Author(s)
Tabolli S, di Pietro C, Renzi CIDI IRCCS Rome, Rome, Italy
Presentation Documents
OBJECTIVES: To examine attitudes and satisfaction with decision-making among psoriatic arthritis (PA) patients, comparing them with cutaneous psoriasis (CP) patients. A further aim was to analyse factors associated with patients preferring an active participation and patient satisfaction. METHODS: A questionnaire was self-completed after a routine medical visit by a consecutive sample of 231 psoriasis patients, including 33 PA patients. The questionnaire was based on previously published instruments and included neutrally worded questions in order to minimise acquiescence response bias. RESULTS: Among patients with CP and PA 27.3% and 28.1%, respectively, preferred to leave decisions entirely to the doctor, while 72.7% and 71.9%, respectively, wanted to be involved in decision-making. Good knowledge level on psoriasis treatments was shown by 17.0% and 21.4% of CP and PA patients. Among PA patients, overall satisfaction was associated with doctors having asked patients if they had preferences or concerns, if they considered patients’ preferences and if they informed patients about treatment options and potential side-effects. At multivariable analysis information on treatment side-effects (OR=5.11; 95%CI 2.5-15.0; p<0.001) and information on treatment options (OR=3.15; 95%CI 1.4-7.1; p=0.006) were associated with overall satisfaction, controlling for diagnosis and other potential confounders. CONCLUSIONS: The majority of patients with PA and CP wanted to participate in decision-making, however we found substantial knowledge gaps. Satisfaction was associated with doctors providing information and actively involving patients in decision-making.
Conference/Value in Health Info
2010-05, ISPOR 2010, Atlanta, GA, USA
Value in Health, Vol. 13, No. 3 (May 2010)
Code
PMS33
Topic
Patient-Centered Research
Topic Subcategory
Adherence, Persistence, & Compliance, Patient-reported Outcomes & Quality of Life Outcomes, Stated Preference & Patient Satisfaction
Disease
Musculoskeletal Disorders, Sensory System Disorders