OBJECTIVES: Russian Society of Pharmacoeconomics and Outcomes Research jointly to Russian Hemophilia Society carried out postal and telephone health survey of all known Russian patients with inhibitor hemophilia in the period 2009-2010. Aim of the study was to assess health status, treatment patterns and quality of life in patients with inhibitory form of hemophilia. METHODS: Postal and telephone health survey. The questionnaire contained questions on clotting factor level and presence of antibodies to it, number of bleeding in last month, number of injections of clotting factors per month, names of used medications, ways of receiving medications, number of ambulance calls and hospitalizations, and the way of administration of medicines. The patients’ education level and employment data was collected. Analysis of experimental data was performed with such statistical parameters as χ² and Student’s criteria. RESULTS: The presence of antibodies was detected in 60 patients with haemophilia A (47 patients (78.3%) were adults, 4 (6.7%) – adolescents, 9 (15%) - children upward 11 years old). Mean age was 30 years. 90% of patients experienced bleeding in the last month (median – 3). 85% of patients used clotting factor VIII in the last month (median – 12 times). 13.3% of patients called for an ambulance in a last month and 21.7% of patients were hospitalized during last month. 68.3% of patients perform the injections of clotting factor themselves. CONCLUSIONS: The study revealed epidemiologic characteristics and treatment patterns of inhibitor hemophilia in Russia.