DEVELOPMENT OF AN EFFECTIVE HOME PALLIATIVE CARE SYSTEM ADOPTING A MULTIDISCIPLINARY TEAM APPROACH – SATISFACTION OF THE PATIENTS' FAMILY FOR THE DOMICILIARY PALLIATIVE CARE “OKAYAMA ” MODEL
Author(s)
Shinya Saito, MD, PhD, Professor1, Kojiro Shimozuma, MD, PhD, Professor2, Mieko Yamaguchi, PhD, Professor31Kochi Women's University, Kochi, Japan; 2 Ritsumeikan University, Kusatsu, Shiga, Japan; 3 Japanese Red Cross Hiroshima College of Nursing, Hatsukaichi, Japan
OBJECTIVES: “Domiciliary palliative care ‘OKAYAMA’ model" in which specialist palliative care team cooperates with primary care team, is attracting attention to promote a home palliative care service in Japan. To evaluate the outcome of this "OKAYAMA model", we investigated the satisfaction of the patients’ family who received the home palliative care service by this model. METHODS: A survey form consisting of 20 items from the FAMCARE Scale was then sent to 83 surviving family members of patients who had received care under this “OKAYAMA” palliative care model. The study plan was reviewed and approved by an ethics committee. RESULTS: The mean score for the survey was 3.94 ± 0.19 points (out of a possible 5). Responses of “satisfied” or better were received by more than 50% of respondents for nearly all items. The ratings were high for “pain relief,” “answers from health professionals,” “availability of doctors to the family,” “doctor’s attention to the patient’s description of symptoms,” and “availability of the doctor to the patient.” A positive assessment was made for time spent and efforts made to respond to the desires of patients’ families following the conclusion of pain control prior to home palliative care. Conversely, issues remain in items such as “availability of a hospital bed.” Four factors were identified in a factor analysis of the FAMCARE Scale: “adequate amount of information,” “attitude of medical personnel,” “education and support system for families,” and “emergency responses.” Only 44% of respondents were satisfied with the care provided by the respondents themselves as a family member, suggesting the need for environmental improvements to ease the burden on families. CONCLUSIONS: The results of this study help us to develop an appropriate model for a home palliative care system using a multidisciplinary team approach.
Conference/Value in Health Info
2008-11, ISPOR Europe 2008, Athens, Greece
Value in Health, Vol. 11, No. 6 (November 2008)
Code
PCN90
Topic
Patient-Centered Research
Topic Subcategory
Stated Preference & Patient Satisfaction
Disease
Oncology