The Role of Parental Self-Efficacy, Capability Well-Being and Electronic Health Literacy in Pediatric Diabetes Management: Insights from a Longitudinal Analysis of Glucose Sensor Data

Author(s)

Hölgyesi Á1, Luczay A2, Tóth-Heyn P2, Muzslay E2, Világos E2, Szabó A2, Baji P3, Kovács L1, Gulácsi L1, Zrubka Z1, Péntek M1
1Óbuda University, Budapest, Hungary, 2Semmelweis University, Budapest, Hungary, 3University of Bristol, Bristol, UK

Presentation Documents

OBJECTIVES: The aim of this study was to assess the sensor wearing habits of children with type 1 diabetes mellitus (T1DM) using longitudinally collected glucose sensor data and to analyse the association of disease control with parental characteristics.

METHODS: An online cross-sectional study was conducted involving parents and their children aged 8-14 with T1DM using glucose sensor in an university-based pediatric diabetes centre. Standard measurements were used to assess parents’ self-efficacy for their child’s diabetes management (PSESDM), electronic health literacy (eHEALS), and capability well-being (ICECAP-A). Glucose values were obtained for a 180-day period prior to the cross-sectional survey, and the average percentage of sensor wear time (% of total time) and time spent in the therapeutic target range (TIR; 3.9-10.0 mmol/L) were determined.

RESULTS: Altogether 84 children (47.6% girls) and parent (82.1% women) dyads were involved, the children’s mean age was 11.9 years (SD=1.8; range 8-15). During the 180-day period studied, childrens’ mean glucose value was 9.33 mmol/L (SD=2.13; range 6.89-20.59), the average sensor wear time was 75.8% (SD=21.3; range 19.0-98.6), and the average TIR was 61.6% (SD=14.9; range 26.6-84.4). There was a moderate negative correlation between parental PSESDM and the child's 180-day average glucose value (r=0.382, p<0.05), and a strong positive correlation with the TIR (r=0.508, p<0.05). Furthermore, the parental ICECAP-A (r=0.242, p<0.05) and eHEALS (r=0.259, p<0.05) were also moderately correlated with the TIR.

CONCLUSIONS: This study provides baseline data on children with T1DM using a glucose sensor. The results also highlight the key role of parents in the effective management of pediatric diabetes. Children whose parents are more confident in diabetes management, have higher electronic health literacy and generally better well-being have better disease control and outcomes.

Conference/Value in Health Info

2024-05, ISPOR 2024, Atlanta, GA, USA

Value in Health, Volume 27, Issue 6, S1 (June 2024)

Code

MT31

Topic

Medical Technologies, Patient-Centered Research

Topic Subcategory

Medical Devices, Patient Engagement

Disease

Diabetes/Endocrine/Metabolic Disorders (including obesity), Medical Devices, Pediatrics

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