Barriers to in-Person Focus Group Participation during the Third-Year of COVID-19 Pandemic: A Case Study of Colorectal Cancer (CRC) Screening in Underrepresented Groups

Author(s)

Rasu R1, Miller-Wilson LA2, Kamt S3, White A4, Chhetri S3, Hittson-Smith R3, Fernandez D5, Sambamoorthi U6
1University of North Texas Health Science Center, Fort Worth, TX, USA, 2Exact Sciences Corporation, Madison, WI, USA, 3University of North Texas Health Science Center at Fort Worth, Argyle, TX, USA, 4University of North Texas Health Sciences Center, Fort Worth, TX, USA, 5Dallas-Fort Worth Community Health Workers Association (DFW-CHW), Fort Worth, TX, USA, 6University of North Texas Health Science Center, Denton, TX, USA

OBJECTIVES:

In the process of conducting research to understand barriers to colorectal cancer (CRC) screening in underrepresented groups such as Blacks and Hispanics, it became evident that there were also barriers to recruitment in this population. This study assesses the challenges faced in recruitment of focus group participants regarding CRC screening practices among underrepresented groups. Since the COVID-19 pandemic, qualitative research participants have primarily been interviewed through online video or audio interactions. However, as restrictions on in-person interactions have been lifted, in-person focus groups are being increasingly considered.

METHODS:

The study investigators began recruitment through community health workers in August 2022, when COVID-19 vaccines were available for all adults (age>18 years). Eligible individuals were: age 45-75, Black or Hispanic, with Medicaid or no insurance, and no family history of CRC or diagnosis of certain colon-related diseases. We combined in-person and virtual recruitment strategies, including posting flyers in communities, advertising our study at health fairs, and on social media. Participants would receive a $50 gift card.

RESULTS:

Fifty-five met the eligibility criteria among 144 respondents, and 45 subjects (29 women and 16 men) agreed to be contacted. An average of 2.5 attempts were made per eligible subject. Unfortunately, we were able to recruit only four women (3 Hispanic and one non-Hispanic black). Traveling to the research site was a barrier to participation. Many subjects (49%) requested virtual participation (online video or audio interactions); some declined because the topic was too sensitive (considered taboo), and eligible men were reluctant to participate in-person.

CONCLUSIONS:

The requirement of in-person participation affected our recruitment goals, suggesting that COVID-19 has shifted the preferences of research participants to virtual interaction. In response to the eligible participant preferences, the study protocol has been revised to re-contact patients and schedule virtual FG sessions.

Conference/Value in Health Info

2023-05, ISPOR 2023, Boston, MA, USA

Value in Health, Volume 26, Issue 6, S2 (June 2023)

Code

EPH26

Topic

Health Policy & Regulatory, Patient-Centered Research, Study Approaches

Topic Subcategory

Health Disparities & Equity, Patient Behavior and Incentives, Patient Engagement, Surveys & Expert Panels

Disease

No Additional Disease & Conditions/Specialized Treatment Areas

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