ARE WE CAPTURING THE ENTIRE PICTURE? ---FAMILY SPILLOVER EFFECTS IN ECONOMIC EVALUATION
Author(s)
Discussion Leaders: Sachin Kamal-Bahl, PhD, President, SKB Consulting Inc., Philadelphia, PA, USA Pei-Jung Lin, Ph.D., Associate Professor, Center for the Evaluation of Value and Risk in Health, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, MA, USA; Erru Yang, MS, Researcher, Technical Institute, Evidence for Access (E4A), US Medical Affairs, Genentech, Inc., South San Francisco, CA, USA; Annie Kennedy, BS, Senior Vice President, Legislation & Public Policy, Parent Project Muscular Dystrophy, Hackensack, NJ, USA
PURPOSE
: Burden of illness is not only limited to affected patients but also to their family members. Many disease conditions have significant impact on family caregivers’ health and finances, resulting in elevated healthcare costs for the entire family. Family spillover has substantial economic implications for payers as they pay for the family. In addition, valuations seldom prioritize reduction of caregiver burden and productivity within current economic models. Such costs may be difficult to quantify and infrequently included in economic evaluations, underestimating the true burden of illness and the value of treatments. The purpose of the workshop is to:- highlight elements and impact of family spillover costs and health effects
- assess current measurement and utilization of family spillover effects in economic modeling
- demonstrate novel empirical studies quantifying family burden in direct and indirect costs using claims data and surveys
- raise awareness of incorporating family costs into economic evaluations
DESCRIPTION
: This workshop will present evidence of family spillover effects from patient experiences, cost-effectiveness analyses (CEA) and real-world analyses and discuss policy implications of such effects in economic evaluation. Dr. Kamal-Bahl will give an overview of family spillover effects for healthcare treatments, sharing the evidence and guidelines from the literature. Dr. Lin will demonstrate how family “spillover effects” such as loss of productivity and health outcomes are considered in CEA in pediatric, chronic and severe diseases, and discuss how their inclusion may influence the reported value of care. Ms. Yang will demonstrate the long-term spillover of direct healthcare costs on family members using claims database and family IDs (pediatric and adult case each). Ms. Kennedy will share the impact of disease on the entire family unit, focusing on patient centered value elements, and the effort of collecting and identifying quantifiable data elements specific to caregiver burden. (10-12 minutes each speaker)Conference/Value in Health Info
2019-05, ISPOR 2019, New Orleans, LA, USA
Code
W11