Resilience, and Positive Parenting in Parents of Children With Autism and Intellectual Disability: Evidence From the Impacts of the COVID-19 Pandemic on Family's Quality of Life and Parent-Child Relationships

Author(s)

Bolbocean C1, Rhidenour K2, McCormack M3, Suter B3, Holder J4
1University of Oxford, Oxford, , UK, 2Baylor University, Waco, TX, USA, 3BCM, Houston, TX, USA, 4Bridge the Gap SYNGAP, Cypress, TX, USA

Presentation Documents

OBJECTIVES: Family quality of life (FQoL) outcomes collected during the first year of COVID-19 has been combined with 2018 data to estimate the outbreak impact on parental outcomes on a sample of 691 families of children with syndromic autism and intellectual disabilities.

METHODS: A total of 120 identical families completed the Beach Center family quality of life Scale - a validated FQoL instrument between 2018 and during the first year of the pandemic as well as reported COVID-19 parental-child outcomes. Multivariate regression models and matching estimators were used to estimate the impact of COVID-19 on FQoL outcomes.

RESULTS: Despite challenges imposed by the COVID-19 outbreak, our study found that FQoL outcomes reported by participating caregivers during the first year of COVID-19 appears to be similar to ratings from the pre-pandemic study. Parents of children in our sample generally displayed a stable functioning trajectory. The COVID-19 pandemic was found to be positively associated with parent-child bonding, relational satisfaction, and increased emotional connection between parents and their children.

CONCLUSIONS: Our findings provide evidence of families’ resilience which might explain positive parent-child interactions during COVID-19. Exploring mechanisms which explain how families with autistic and intellectual disability children confront, manage disruptive experiences, and buffer COVID-19 induced stress is a fruitful direction for future research.

Conference/Value in Health Info

2022-11, ISPOR Europe 2022, Vienna, Austria

Value in Health, Volume 25, Issue 12S (December 2022)

Code

PCR131

Topic

Patient-Centered Research, Study Approaches

Topic Subcategory

Patient-reported Outcomes & Quality of Life Outcomes, Surveys & Expert Panels

Disease

STA: Generics

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