Towards a Broader Patients' Perspective: The Theory and Practice of Socioeconomic Impact Research
Author(s)
Michael Schlander, MD, PhD, MBA, Division of Health Economics, German Cancer Research Center (DKFZ), Heidelberg, BW, Germany, Valesca P Retel, PhD, The Netherlands Cancer Institute, Amsterdam, NH, Netherlands, Jasper Ubels, MSc, Division of Health Economics, German Cancer Research Center (DKFZ), Heidelberg, Germany and Camila Quirland, PharmD, MSc, Universidad Católica de Chile, Santiago, Chile
Presentation Documents
Purpose: Members of the Task Force on “Socioeconomic Impact Analysis” within the Health Economics Working Group of the Organisation of European Cancer Institutes (OECI) will present and discuss their consented recommendations for future research into the broader social and economic consequences of cancer and cancer care for patients and their relatives. The OECI has a membership of over 110 cancer centers and major (university) hospitals in Europe. Description: The session will begin with an introduction to explicate the rationale and the need for a coherent conceptual basis for research into the socio-economic consequences of cancer from the perspective of patients and their relatives, combining alignment with health economic theory and principles of patient reported outcome (PRO) research. It will conclude with a summary of the OECI Task Force consensus recommendations (MS, 12 minutes). The introduction will be followed by a presentation of major findings from an in-depth analysis of frameworks and terminology, forming the basis for a comprehensive model of socioeconomic impact (JU, 11 minutes). The workshop will continue by elaborating the multiple dimensions of costing from a patients’ perspective and their implications for the validity of research projects (CQL, 11 minutes). The presentations will conclude with the summary findings from the SEC Trial, the first pan-European survey of the socioeconomic consequences of cancer involving over 2,300 patients from at least 10 EU countries, including an outlook towards further research, for example into the validity of instruments used to measure socioeconomic impact (VR, 11 minutes). The session will be concluded by a discussion between audience and panel members (15 minutes). This session may benefit researchers and policymakers interested in a better understanding of the socio-economic consequences of cancer and cancer care for patients and their relatives beyond its impact on purely health-related quality of life.
Conference/Value in Health Info
2022-11, ISPOR Europe 2022, Vienna, Austria
Code
205.1
Topic
Patient-Centered Research