PATIENT ENGAGEMENT IN HEALTH RESEARCH- VALUE OF LESSONS LEARNED IN HTA AND POSSIBILITIES FOR CROSS CONTEXT TRANSFER OF EXPERIENCE

Author(s)

Discussion Leaders: Neda Milevska Kostova, PhD, Board Member, International Alliance of Patient Organisations, Skopje, Macedonia Tamás Bereczky, PhD Social Psychology, Communication Officer, Training, European Patients Academy for Therapeutic Innovation (EUPATI), Berlin, Germany; Wendy Wiedner, BA, MA, Research and Policy Project Lead, Policy, Alzheimer’s Disease International, London, UK; Kawaldip Sehmi, Msc. Public Health, MBA LLB, Chief Executive Officer, Policy, International Alliance of Patient Organisations, London, UK

Presentation Documents

PURPOSE: Can the rest of the world replicate the European Patients Academy (EUPATI) approaches to HTA, pioneered in European Union to educate patients in healthcare research and development as we roll out universal health coverage for the rest of the world. Is HTA definition universal and can that be adapted for all healthcare settings?Is this guidance specific to the institutional, legal, policy, practice and standards infrastructural arrangement of the EU or can it be adopted anywhere globally?

DESCRIPTION: The discussants will describe if there are cultural and structural dimensions which support or restrict patient engagement in the health technology assessment process in low- and middle-income countries. Specific issues to be discussed will be:

  • Consultations with patient organizations: Is there a barrier when inviting and involving patient organizations? Is there a difference in how European and LMIC patients react when invited for written evidence base submissions? Can we ensure equity and inclusiveness when inviting oral submissions at committee meetings?
  • Providing access and support: How can health policy makers and researchers provide support and encourage uptake of templates, guidance documents, and preparing to act as patient experts at meetings; provide language and health literacy that is sensitive & easy to read summaries of documentation sent out ahead of individual HTAs? Improve LMIC free access for patients to any original publications that will form part of the HTA evidence?
  • Identifying and prioritizing which technologies to assess for developing a system for patients to nominate technologies for HTA.
In addition, the panel will invite discussion on: How can we optimise and summarize patient input in HTA outcome documents, and how it was used in reaching the final recommendation? Is there a need to develop and disseminate a clear system for patients to appeal HTA decisions and involve patients in the review of patient involvement processes?

Conference/Value in Health Info

2019-11, ISPOR Europe 2019, Copenhagen, Denmark

Code

W10

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