OBJECTIVES : To highlight the support needed by Brazilian migraine patients on their daily basis and their out-of-pocket healthcare expenditure.

METHODS : This was a cross-sectional, multinational study conducted in 31 countries, including Brazil. Adult patients aged ≥18 years old with at least ≥4 migraine days each month in the last three months were selected to participate in a survey conducted primarily online between September 2017 and February 2018. Patients were asked to respond to specific questions on support needed on everyday tasks, support from organizations and out-of-pocket healthcare expenditure (reported in Brazilian Local Currency (BRL), exchange rate: 4.10 BRL/1.00 USD).

RESULTS : 851 Brazilian patients participated (88% female; 93% aged 18-49 years old; 38% with >10 years being affected by migraine; 74% of the patients suffered from at least one chronic condition). 591 patients (69%) relied on somebody to help them with everyday tasks on an average of 16.1 days in the last three months. 8% of the subjects reported being aware of a patient support organization, of those, 25% have used its services before. Patients who have used a support organization regarded its services as being useful (7.1 average score on a 0-to-10 rating scale). Migraine patients with no other comorbidities reported a migraine monthly expenditure of 206.78 USD, including 43.22 USD for doctor’s fees, 32.20 USD for health insurance, 29.61 USD for complementary treatment and 26.54 USD for prescription fees.

CONCLUSIONS : Brazilian patients with migraine reported a high index of relying on others for everyday tasks. Although few patients reported being aware of support organizations, those who utilized their services regarded it as being useful. Patients also have a significant monthly expenditure on the management of their migraine. The strengthening of patient’s support organizations and development of access to treatment pathways, other than out-of-pocket, could reduce the personal and economic impact on patients’ lives.