New! Why All the Hype? Nordic Data Explained

Author(s)

Faculty: Kirk Geale, MSc, Quantify Research AB, Stockholm, Sweden Fredrik Borgström, MSc, PhD, Quantify Research AB, Stockholm, Sweden; Ingrid Lindberg, MSc, Quantify Research, Stockholm, Sweden

Nordic data has become a hot topic in epidemiology, HEOR, and other observational research in recent years, and for good reason. Denmark, Finland, Iceland, Norway, and Sweden maintain datasets covering the entire Nordic population of over 26 million inhabitants for the duration of their lifetimes. The data includes information on demographics, diagnoses, prescription drugs, socioeconomics, PROs, disease severity, and more. All of this data may all be linked through unique, patient-level social security numbers. The coverage and breadth of data available to researchers in the Nordic countries is globally unparalleled. This course focuses on describing the content and structure of the Nordic data in terms of the variety of ways patients are included, how long they are followed up, what variables are available, and the quality of the data. This leads directly into a discussion about how this data can benefit researchers as well as the key limitations. The course will also consider practical aspects of using Nordic data, including data access from legal and procedural perspectives. Comparisons to other well-known European data such as CPRD will be explored. Key applied examples of analyses using Nordic data will be presented to illustrate the usage and possibilities of this data, including registry-based randomized clinical trials. Note: The applied section of the course will have you assess the feasibility of using Nordic data to address your own research questions, in discussion with course leaders. Please be prepared with a research question. No computer programs are needed for this course.

Conference/Value in Health Info

2019-11, ISPOR Europe 2019, Copenhagen, Denmark

Code

SC5

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