ASSESSING SELF-REPORTED HEALTH AND QUALITY OF LIFE IN ETHNICALLY DIVERSE CAREGIVERS FOR PEOPLE WITH AGITATION IN ALZHEIMER'S DEMENTIA
Author(s)
Emily S. Reese, MPH, PhD1, Debra Eisenberg, PhD2, Heidi C. Waters, MBA, PhD3, Jinyi Wang, PhD4, David Wang, PhD5, Sanjeda Chumki, PharmD6, David Richardson, BA7;
1Otsuka Pharmaceutical Research & Development, Inc, Global Integrated Evidence & Innovation, Princeton, NJ, USA, 2Lundbeck, Conestoga, PA, USA, 3Blue Persimmon Group, Fernandina Beach, FL, USA, 4RTI Health Solutions, Durham, NC, USA, 5Lundbeck, Deerfield, IL, USA, 6Otsuka, Princeton, NJ, USA, 7RTI Health Solutions, Research Triangle Park, NC, USA
1Otsuka Pharmaceutical Research & Development, Inc, Global Integrated Evidence & Innovation, Princeton, NJ, USA, 2Lundbeck, Conestoga, PA, USA, 3Blue Persimmon Group, Fernandina Beach, FL, USA, 4RTI Health Solutions, Durham, NC, USA, 5Lundbeck, Deerfield, IL, USA, 6Otsuka, Princeton, NJ, USA, 7RTI Health Solutions, Research Triangle Park, NC, USA
OBJECTIVES: This study sought to understand self-reported health and quality of life (QOL) among ethnically diverse caregivers (CG) of people with agitation in Alzheimer’s dementia (AAD).
METHODS: A non-interventional, cross-sectional, web-based survey was conducted of adults (>18 years old) residing in the US and caring for someone with AAD (> 5 unpaid hours/week). Quotas were set for ethnic groups reflective of the US population. Descriptive analyses summarized responses from the entire sample and by racial/ethnic subgroup. Responses of good, very good, or excellent were characterized as positive.
RESULTS: Of the 200 qualified respondents (67.5% female; mean age 46 years; 56% married; 68% employed at least part-time), 28% were White, 20% Latino, 17.5% African American/Black (AA/B), 15.5% Asian/Asian American (A/AA), 9.5% Alaska Native/American Indian/Native American (AN/NA), 2.5% Middle Eastern/North African (ME/NA), 2.5% Native Hawaiian/Pacific Islander (NH/PI), and 4.5% selected “race not listed.” Most CG (84.5%) rated their physical health positively, with the lowest percentages in A/AA (77.4%). CG ranked their mental health (75.5%) and QOL (74%) positively, but a lower percentage of White respondents reported positive mental health (71.4%) and QOL rankings (69.7%). Only 52% of respondents gave their social health positive ratings, with the lowest percentages among White (35.7%), AA/B (42.9%), and Latino (50.0%) respondents. When CG were asked how often they did things for themselves during the past month, 67% (95% CI: 60.0%, 73.5%) reported sometimes, often, or always, with the highest percentage among ME/NA caregivers (100% [95% CI: 47.8%, 100%]), and the lowest among White CG (53.6% [95% CI: 39.7%, 67.0%). Most CG (71.5% [95% CI: 64.7%, 77.6%] reported they do not have enough time for social activities.
CONCLUSIONS: Caring for someone with AAD may impact mental health, QOL, and increase social isolation regardless of ethnicity. Support programs for caregivers should target reducing social isolation.
METHODS: A non-interventional, cross-sectional, web-based survey was conducted of adults (>18 years old) residing in the US and caring for someone with AAD (> 5 unpaid hours/week). Quotas were set for ethnic groups reflective of the US population. Descriptive analyses summarized responses from the entire sample and by racial/ethnic subgroup. Responses of good, very good, or excellent were characterized as positive.
RESULTS: Of the 200 qualified respondents (67.5% female; mean age 46 years; 56% married; 68% employed at least part-time), 28% were White, 20% Latino, 17.5% African American/Black (AA/B), 15.5% Asian/Asian American (A/AA), 9.5% Alaska Native/American Indian/Native American (AN/NA), 2.5% Middle Eastern/North African (ME/NA), 2.5% Native Hawaiian/Pacific Islander (NH/PI), and 4.5% selected “race not listed.” Most CG (84.5%) rated their physical health positively, with the lowest percentages in A/AA (77.4%). CG ranked their mental health (75.5%) and QOL (74%) positively, but a lower percentage of White respondents reported positive mental health (71.4%) and QOL rankings (69.7%). Only 52% of respondents gave their social health positive ratings, with the lowest percentages among White (35.7%), AA/B (42.9%), and Latino (50.0%) respondents. When CG were asked how often they did things for themselves during the past month, 67% (95% CI: 60.0%, 73.5%) reported sometimes, often, or always, with the highest percentage among ME/NA caregivers (100% [95% CI: 47.8%, 100%]), and the lowest among White CG (53.6% [95% CI: 39.7%, 67.0%). Most CG (71.5% [95% CI: 64.7%, 77.6%] reported they do not have enough time for social activities.
CONCLUSIONS: Caring for someone with AAD may impact mental health, QOL, and increase social isolation regardless of ethnicity. Support programs for caregivers should target reducing social isolation.
Conference/Value in Health Info
2026-05, ISPOR 2026, Philadelphia, PA, USA
Value in Health, Volume 29, Issue S6
Code
PCR131
Topic
Patient-Centered Research
Topic Subcategory
Patient Engagement
Disease
SDC: Geriatrics, SDC: Neurological Disorders