CULTURAL ADAPTATION AND LINGUISTIC VALIDATION OF THE CANCER AWARENESS MEASURE FOR INDIVIDUALS WITH INTELLECTUAL DISABILITIES IN HUNGARY
Author(s)
Mohammed ELMADANI, MSc1, Klára Simon, MSc2, Godfrey MBAABU LIMUNGI, MSc1, Maha BESBES, MSc1, Amer MESMAR, MSc1, Éva HORVÁTH, MSc1, Lívia TÓTH, MSc1, Diána Elmer, BSc, MSc, PhD2, Orsolya Máté, PhD, habil.2;
1University of Pécs, Faculty of Health Sciences, Doctoral School of Health Sciences, Pécs, Hungary, 2University of Pécs, Faculty of Health Sciences, Pécs, Hungary
1University of Pécs, Faculty of Health Sciences, Doctoral School of Health Sciences, Pécs, Hungary, 2University of Pécs, Faculty of Health Sciences, Pécs, Hungary
OBJECTIVES: This study aimed to adapt and validate the cancer awareness measure (CAM) for adults with ID in Hungary and assess their cancer literacy.
METHODS: A cross-sectional study was conducted among 232 adults with mild and moderate ID living in community and residential care settings. The CAM was cognitively simplified, translated into Hungarian, and reviewed by an expert. Psychometric evaluation included internal consistency (Cronbach’s α), content validity (item- and scale-level content validity indices), and face validity assessed through pilot testing. The associations between cancer awareness domains and demographic variables were examined using independent t-tests and one-way ANOVA.
RESULTS: The adapted CAM demonstrated satisfactory to strong internal consistency across subscales (Warning Signs α = 0.842; Risk Factors α = 0.785; Prevention α = 0.714; Barriers to Seeking Help α = 0.842) and excellent content validity (S-CVI/Ave = 0.96). The mean scores were 5.47/9 for Warning Signs, 36.41/55 for Risk Factors, 3.79/7 for prevention, and 27.88/33 for barriers. Participants living with their families showed higher warning sign knowledge (p = 0.022), while those in residential care reported higher perceived barriers (p = 0.004). A family history of cancer and participation in cancer screening were associated with higher knowledge scores. Older age (≥65 years), vocational education, and full-time employment were associated with better cancer awareness, with no significant sex differences observed.
CONCLUSIONS: The adapted CAM is a reliable and valid instrument for assessing cancer awareness among adults with ID in Hungary. The findings reveal important contextual and demographic disparities, underscoring the need for tailored, inclusive cancer education and strengthened caregiver support to improve early detection and prevention in this population.
METHODS: A cross-sectional study was conducted among 232 adults with mild and moderate ID living in community and residential care settings. The CAM was cognitively simplified, translated into Hungarian, and reviewed by an expert. Psychometric evaluation included internal consistency (Cronbach’s α), content validity (item- and scale-level content validity indices), and face validity assessed through pilot testing. The associations between cancer awareness domains and demographic variables were examined using independent t-tests and one-way ANOVA.
RESULTS: The adapted CAM demonstrated satisfactory to strong internal consistency across subscales (Warning Signs α = 0.842; Risk Factors α = 0.785; Prevention α = 0.714; Barriers to Seeking Help α = 0.842) and excellent content validity (S-CVI/Ave = 0.96). The mean scores were 5.47/9 for Warning Signs, 36.41/55 for Risk Factors, 3.79/7 for prevention, and 27.88/33 for barriers. Participants living with their families showed higher warning sign knowledge (p = 0.022), while those in residential care reported higher perceived barriers (p = 0.004). A family history of cancer and participation in cancer screening were associated with higher knowledge scores. Older age (≥65 years), vocational education, and full-time employment were associated with better cancer awareness, with no significant sex differences observed.
CONCLUSIONS: The adapted CAM is a reliable and valid instrument for assessing cancer awareness among adults with ID in Hungary. The findings reveal important contextual and demographic disparities, underscoring the need for tailored, inclusive cancer education and strengthened caregiver support to improve early detection and prevention in this population.
Conference/Value in Health Info
2026-05, ISPOR 2026, Philadelphia, PA, USA
Value in Health, Volume 29, Issue S6
Code
MSR116
Topic
Methodological & Statistical Research
Topic Subcategory
PRO & Related Methods, Survey Methods
Disease
No Additional Disease & Conditions/Specialized Treatment Areas, SDC: Oncology