Using Patient Centered Digital Endpoints to Measure Whole Health

Moderator

Annette Champion, BSc, MBA, Healthcare Research Insights, Inc, Lake Forest, IL, United States

Speakers

Anita D Burrell, BA, MA, MBA, Anita Burrell Consulting LLC, Flemington, NJ, United States; Anke-Peggy Holtorf, MBA, PhD, Health Outcomes Strategies, GmbH, Basel, Switzerland

Instead of treating a specific disease/symptom, whole health focuses on restoring health, promoting resilience, and preventing disease across the lifespan. ISPOR notes that Whole Health expands the definition of value to ask if evidence captures the full range of outcomes and costs recognizing the physical, behavioral, socioeconomic, environmental and spiritual dimensions of health. A key component of whole health is that it prioritizes outcomes of importance to individuals while promoting well-being for all. Digital devices can measure biomarkers such as physical function, speech, eye movement, and metabolic and physiological markers which can inform endpoints that matter to patients, e.g. ability to walk without stopping to catch a breath. This forum will explore three perspectives on how digital technologies may offer opportunities to deliver on the concept of whole health by measuring not only whether an intervention treats disease, but whether it improves people’s functioning, well-being, equity, self-management, and life context in ways that are clinically meaningful and economically relevant. The first speaker will address the concept of whole health focusing on the payer perspective. What aspects have payers accepted as digital endpoints and how can these be integrated into HTA. The second speaker will suggest co-creation with patients of digital endpoints may support the user’s ability to function, participate, manage daily life, and experience well-being within their real social and environmental context. The third speaker will ground the discussion in practice, presenting a real-world example of a digital health technology whose digital mobility outcomes capture meaningful, real-time measures that support the whole health concept. This session convenes experts who will share experiences and offer solutions to align expectations of the promise of digital technologies to incorporate Whole Health across patient research and payer perspectives.

Topic

Clinical Outcomes, Medical Technologies, Patient-Centered Research

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