DEVELOPMENT OF ASTHMA-SPECIFIC OUTCOMES MEASURES FOR CHILDREN
Author(s)
Sweeny, SF, Research Triangle Institute; Lucas DO, Glaxo Wellcome, Inc, ; Creer, TL, Ohio University; French, DJ, University of Western Australia, Medlands, Australia
To facilitate the evaluation of a new pediatric asthma management program, "HUFF and PUFFSM The Children's Asthma Program," a set of children's outcomes surveys, including measures of quality-of-life (QoL) and self-efficacy, were prepared. Each instrument was pretested through individual cognitive interviews with asthmatic children ranging in age from four to eight years old. QUESTIONNAIRE 1: The QoL measure, the Childhood Asthma Questionnaire - Form A, was developed in England by Davina French and colleagues. Although it was designed to measure both global and asthma-specific QoL in young children, the questionnaire needed to be adapted for use in the U.S. Our most interesting cognitive findings pertain to children's ability to select appropriate responses and relate to item content. For example, the youngest children had difficulty distinguishing between certain response categories, and some items were not optimally worded for older children. QUESTIONNAIRE 2: The original version of the self-efficacy measure was developed by Thomas Creer for use with adults. Because this program is targeted for young children, we initially modified the scale by reducing the number of items and adding graphics to clarify the response categories. Cognitive findings indicated that children had difficulty answering items about situations which did not trigger their asthma. Therefore, the survey was limited to triggers most commonly acknowledged by children. Gate questions were also added to ensure that children would only be asked to provide self-confidence evaluations about their personal triggers. Additional modifications were aimed at making the questions and response categories as concrete as possible. PSYCHOMETRIC EVALUATION: Psychometric properties of these instruments will be evaluated during the pilot program which is currently underway.
Conference/Value in Health Info
1998-05, ISPOR 1998, Philadelphia, PA, USA
Value in Health, Vol. 1, No. 1 (May/June 1998)
Code
CC6
Topic
Clinical Outcomes
Topic Subcategory
Clinical Outcomes Assessment
Disease
Respiratory-Related Disorders