USING A DISCRETE CHOICE EXPERIMENT TO VALUE INFORMAL CARE PROVIDED TO CHILDREN WITH INTELLECTUAL DISABILITIES

Author(s)

Arora S1, Goodall S1, Viney R1, Einfeld S2
1University of Technology Sydney, Sydney, Australia, 2University of Sydney, Sydney, Australia

OBJECTIVES: There are extensive care needs associated with raising a child with an intellectual disability (ID). It is estimated that families spend 52-85 hours per week providing informal care, depending on disability severity. Traditional approaches use revealed preference methodology to estimate time costs associated with informal caregiving. However, these data do not account for unobserved effects or the heterogeneity of carer preferences. This research aims to use stated preference methodology to value individual’s preferences for informal care provided to children with ID. METHODS: A discrete choice experiment (DCE) was designed to elicit an individual’s willingness to accept compensation for different care tasks. Respondents were asked to choose between two scenarios describing a free of charge care package or providing that care themselves and receiving cash compensation. The care package included; personal care, social support, errands and housework; and the number of hours of care differed by choice set The DCE was completed online and choices were analysed using a generalised multinomial logit model (G-MNL). RESULTS: A representative sample of 198 completed the survey. Overall carers would accept a minimum of $AUD20.61 to provide an extra hour of care. There was significant variation in the preferences for assistance with different types of care tasks. Most value was placed on providing social support, which included tasks such as discipline, supervision and encouragement of social interaction. Individuals accepted a minimum of $AUD35.96 to provide an extra hour of social support care. CONCLUSIONS: This study demonstrates that informal care tasks are not valued equally. Carers placed the most value on social support, which may reflect the time spent by carers on these tasks. The results of this study will help guide the prioritisation of care provided to these families.

Conference/Value in Health Info

2016-09, ISPOR Asia Pacific 2016, Singapore

Value in Health, Vol. 19, No. 7 (November 2016)

Code

PIH15

Topic

Health Policy & Regulatory

Topic Subcategory

Public Spending & National Health Expenditures

Disease

Pediatrics

Explore Related HEOR by Topic


Your browser is out-of-date

ISPOR recommends that you update your browser for more security, speed and the best experience on ispor.org. Update my browser now

×