FOLLOW-UP OF PEDIATRIC PATIENTS UNDER TREATMENT WITH SOMATROPIN IN BRAZIL THROUGH A PATIENT SUPPORT PROGRAM (PSP)
Author(s)
Seiler P, Guimaraes F, Biglia LV, Souza PV
Merck, São Paulo, Brazil
OBJECTIVES:: Somatropin is indicated for pediatric patients with GH deficiency among other indications and usually presents low adherence. The aim was to carry out a survey with pediatric patients under treatment with somatropin to identify unmet needs of treatment and to understand how the Patient Support Program helps, through specialized monitoring a better treatment and monitoring of children patients included on the patient support program. METHODS:: A questionnaire was developed to be applied to pediatric patients in treatment who accepted to participate in the PSP. Through telephone calls, both active and receptive, the patients or their caregivers were asked 8 questions, 7 being objective and the last one subjective. Patients were inquired about: residence status, gender, level of satisfaction with the nurse care and suggestions / critiques. RESULTS:: 92 responses were recorded in the period from 06/8/2016 to 01/24/2017. Most of the patients live in the Southeast Region (59.8%), followed by the Northeast (13.1%), South (10.9%), Central West (9.8%) and North (6.4%). 61% are males. 77.2% are very satisfied with the nurse care visit, 84.8% would like to receive regular follow-up, 56.5% gave 10 to the satisfaction level of with the support provided by Endocare. The last question, being subjective, had a response rate of 47.8%, of which 57% contained only praise. CONCLUSIONS:: The satisfaction survey presented interesting results regarding the treatment of pediatric patients. As most of the patient’s caregivers felt contemplated with nurse visit, it may be related with an increase of the adherence to the treatment since most caregivers and physicians would like to receive periodic monitoring of the PSP. The program provides greater patient contact that may help to have a better clinical outcome due to this patient care.
Conference/Value in Health Info
2017-09, ISPOR Latin America 2017, Sao Paulo, Brazil
Value in Health, Vol. 20, No. 9 (October 2017)
Code
PDB14
Topic
Patient-Centered Research
Topic Subcategory
Stated Preference & Patient Satisfaction
Disease
Diabetes/Endocrine/Metabolic Disorders, Pediatrics