OBJECTIVES: Describe patient recruitment strategies and assess geographic representativeness of the sample in a survey of US patients with myeloproliferative neoplasms (MPNs), a group of rare blood cancers. METHODS: The Living with MPNs survey was a 20-minute online questionnaire administered to patients between the ages of 18-70 who had MPNs. The survey assessed the impact of MPNs on employment, work productivity, and activities of daily living. Survey data were collected between April and November 2016. An optional $25 incentive was offered to respondents who completed the survey. Survey recruitment strategies included posts on MPN-focused social media (e.g., patient group Facebook pages), emails and/or post cards sent by MPN groups, posts on patient advocacy websites, banner ads at selected medical websites, text or banner ads through Google or Facebook, and postcards sent to hematologist/oncologist offices for distribution. Geographic representativeness was assessed by number of respondents per 10 million residents of each US state. RESULTS: