HEALTH RELATED QUALITY OF LIFE IN THE DEAF BRITISH SIGNING POPULATION
Author(s)
Shields GE, Rogers KD, Young A, Davies LM
The University of Manchester, Manchester, UK
OBJECTIVES: Mental health and health difficulties are more prevalent in the signing Deaf population than in the hearing population. As part of a NIHR HS&DR funded study (Ref: 12/136/79) the EQ-5D-5L was translated into British Sign Language (BSL). This paper presents data from this study and compares the utility values for the Deaf population with the general population to assess the impact of being Deaf on utility. METHODS: Ninety two Deaf BSL users participated in the translation study and completed the BSL versions of EQ-5D-5L and the CORE-10. Mean utility values were calculated for all participants and those with depression. Regression was used to identify key characteristics/covariates for EQ-5D utilities. Participants EQ-5D utility values were compared with published norms from the hearing population. RESULTS: On average, across the EQ-5D domains Deaf respondents were 20% less likely to select ‘no problems’; with 74% of Deaf respondents reporting problems on one or more domain. 56% reported some (slight to extreme) problems with depression/ anxiety, compared to 22% in the published norms. The overall mean utility value for Deaf people was 0.78 (SD 0.21), compared to the estimated utility of 0.91 (SD 0.16) for the general population of similar age (from published norms). CONCLUSIONS: This study demonstrate that the mean utility in this group around 10% lower than published population norms. Utility values from the hearing population may not be applicable to Deaf people. Interventions focused on BSL users are needed to increase health status and utility, particularly related to mental health.
Conference/Value in Health Info
2016-10, ISPOR Europe 2016, Vienna, Austria
Value in Health, Vol. 19, No. 7 (November 2016)
Code
PSS53
Topic
Patient-Centered Research
Topic Subcategory
Health State Utilities, Patient-reported Outcomes & Quality of Life Outcomes
Disease
Mental Health, Sensory System Disorders