ROUTINE ELECTRONIC PATIENT REPORTED OUTCOME (EPRO) DATA COLLECTION IN AN ORTHOPAEDIC OUTPATIENT CLINIC – METHODS USED TO ENSURE PROPER MIGRATION OF THE PRO MEASURE AND BENEFITS TO THE CARE PATHWAY

Author(s)

Harrington R1, Churchman D2, Dawson J3, Clayson D4, Price A1, Rees J11Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), Oxford, United Kingdom, 2Isis Innovation Ltd., Oxford, Oxfordshire, United Kingdom, 3Health Services Research Unit, Department of Public Health, University of Oxford, Headington, Oxford, United Kingdom, 4PharmaQuest Ltd, Banbury, Oxfordshire, United Kingdom

OBJECTIVES: To develop and test an ePRO system for routine collection of surgical outcomes in a busy orthopaedic clinic.  METHODS: We developed an ePRO (iPad) version of the widely adopted Oxford Knee (OKS) and Shoulder (OSS) scores. A multi-stage process was undertaken to ensure ePRO versus paper version equivalence involving the PRO instrument developer, PRO manager, PRO translation specialists as well as surgeons and Electronic Management Record (EMR) hospital specialists. This included, a review of the draft ePRO version; pilot-testing (cognitive debriefing and usability testing) on five patients attending an outpatients clinic; with pilot-tested results reviewed to ensure no issues arose during migration to ePRO. RESULTS: The ePRO version of both questionnaires were shown, from pilot-testing, to be easy to use. Compared with OKS and OSS paper versions, ePRO responses were all legible (an issue for some Rheumatoid patients) and complete. ePRO completion also takes care of data entry, resulting in a dataset free of errors that might otherwise arise. This suggested the potential for higher return rates with reduced handling costs. Following review of pilot-testing, no significant issues were identified, so the final ePRO versions were adopted. Secure synchronisation of the completed ePRO results with the local EMR system proved straight-forward, required little data cleaning and provided almost immediate feedback of outcomes to clinicians. CONCLUSIONS: Initial results demonstrated the OKS and OSS have been successfully migrated to the ePRO (iPad) version, with results from pilot-testing demonstrating that the validity of the original PRO instrument is retained. ePRO completion enters scores instantaneously on the local EMR system and as a result routine collection of a high volume of PROs could be achieved efficiently. This development facilitates the collection of PRO measure data within the clinic setting, highlighting their potential to enhance patient-centred care across the patients care pathway.

Conference/Value in Health Info

2012-06, ISPOR 2012, Washington, D.C., USA

Value in Health, Vol. 15, No. 4 (June 2012)

Code

PMS54

Topic

Patient-Centered Research

Topic Subcategory

Patient-reported Outcomes & Quality of Life Outcomes

Disease

Musculoskeletal Disorders

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