UPDATE OF THE PATIENT-REPORTED OUTCOME AND QUALITY OF LIFE INSTRUMENTS DATABASE (PROQOLID)- INCLUSION OF E-PRO INFORMATION
Author(s)
Caron M*;Perrier LL, Acquadro C Mapi Research Trust, Lyon, France
Presentation Documents
OBJECTIVES: In 2002, PROQOLID was launched to provide an overview of existing PRO instruments and a facilitated access to the instruments and their developers through the structured presentation of synthesized, reliable, and constantly updated data. With the constant growth of electronic capture of patient-reported outcomes, detailing information about modes of data collection (i.e., paper vs. electronic) in PROQOLID might become a crucial step in updating the database. The objective of this study was: (1) To review how e-PROs are currently reported in PROQOLID; and (2) To propose (if needed) ways of clarifying and updating e-PRO information. METHODS: PROQOLID was searched to retrieve current information about e-PROs using an advanced search engine. RESULTS: The e-PRO information was found under the category “mode of administration.” Three options could be chosen: computer-administered, electronic-administered, and IVR (Interactive Voice Response) version. Out of the 751 instruments in the database, 37 (5%) were reported with e-PRO information. Information about existing translations of electronic versions was clearly specified for three questionnaires. To clarify and update e-PRO information in PROQOLID, several recommendations are proposed: (1) To create a new category, i.e., mode of data collection, in order to differentiate it from the "mode of administration” category; (2) To categorize each mode of data collection into five subcategories [i.e., Hand-Held Device, IVR, Internet web-data capture, Pen, and Tablet]; and (3) To provide a list of all translations available in each mode of data collection. CONCLUSIONS: This review has shown that PROQOLID already includes e-PRO information. Recommendations are given on how to modify the organization and content of the database to present the information on electronic capture of PROs.
Conference/Value in Health Info
2013-11, ISPOR Europe 2013, The Convention Centre Dublin
Value in Health, Vol. 16, No. 7 (November 2013)
Code
PRM53
Topic
Real World Data & Information Systems
Topic Subcategory
Reproducibility & Replicability
Disease
Multiple Diseases