CANADIAN PATIENT SURVEY TO ASSESS PATIENTS' PLIGHT TO MOVEMENT DISORDER DIAGNOSES AND BOTULINUM TOXIN TYPE-A (BONTA) TREATMENT - FINAL RESULTS
Author(s)
N/A The Canadian Movement Disorders Survey Group, N/A, N/A1, Susan Simonyi, BScN, RN, Manager, Health Outcomes / Medical Affairs2, Mandar Jog, MD, Director, Movement Disorders Program31', ', Canada; 2 Allergan, Inc., Markham, ON, Canada; 3 London Health Sciences Centre, London, ON, Canada
OBJECTIVES To assess and describe the diagnostic and treatment pathways of movement disorders responsive to BoNTA, Allergan Units and assess the types and number of healthcare professionals seen by patients before their movement disorder diagnosis was made and the length of time from onset of symptoms to diagnosis. METHODS Patients with movement disorders completed a 19-question survey developed by the Canadian Movement Disorders Survey Group. Questions included patient demographics, length of time from onset of symptoms, number and types of physicians seen, other diagnoses made, number of patients treated with BoNTA and distance traveled. RESULTS In this final analysis, 879 patients with movement disorders responsive to BoNTA were surveyed. Majority of the patients were female (72%), traveling an average of 69 km one-way. Most common movement disorder diagnoses were cervical dystonia (42%), hemifacial spasm (20%), and blepharospasm (9%). Common diagnoses made prior to the movement disorder diagnoses were nerve/muscle problem (33%), stress/psychological problem (39%), tremor (16%), fibromyalgia (14%), TMJ (10%), joint/tendon problem (15%) and spine (10%). The average number of physicians seen before the movement disorder diagnosis was 3.1. Amongst these were family physicians (78%), neurologists (71%), movement disorder specialists (32%), chiropractors (17%), eye care doctors (17%), physiotherapists (17%), and neurosurgeons (10%). Most physicians who made the current movement disorder diagnoses were neurologists (63%) and movement disorder specialists (33%). The average time in years from onset of symptoms to movement disorder diagnosis were: cervical dystonia 6.6, blepharospasm 4.7, hemifacial spasm 3.8, spasmodic dysphonia 2.5, limb dystonia 8.2, Meige syndrome 2.8,, generalized dystonia 1.6, oromandibular dystonia 2.1. 95% of patients were treated with BoNTA following their movement disorder diagnosis. CONCLUSIONS The number of physicians seen and length of time from onset to movement disorder diagnoses are considerable. Increased awareness of movement disorders at the primary care level may improve these rates.
Conference/Value in Health Info
2009-05, ISPOR 2009, Orlando, FL, USA
Value in Health, Vol. 12, No. 3 (May 2009)
Code
PND29
Topic
Patient-Centered Research
Topic Subcategory
Patient-reported Outcomes & Quality of Life Outcomes
Disease
Multiple Diseases, Neurological Disorders