A Roadmap for Increasing the Usefulness and Impact of Patient-Preference Studies In Decision-Making In Health: The Final Recommendations From The ISPOR Using Patient Preferences To Inform Decision Making Good Practices Task Force

Author(s)

Moderator: Sebastian Heidenreich, MSc, PhD, Evidera, London, LON, UK
Speakers: Esther de Bekker-Grob, PhD, Erasmus School of Health Policy and Management (ESHPM) / Institute for Medical Technology Assessment (iMTA), Erasmus University Rotterdam, Rotterdam, Netherlands; Jacoline Bouvy, PhD, National Institute for Health and Care Excellence, London, LON, UK; Eric William Low, MSc, Eric Low Consulting, Haddington, ELN, UK

There is growing interest in increasing the use and relevance of patient preferences studies among decision makers in health. The task force focused on developing a new framework that would: 1) be applicable to the wide variety of preference methods; 2) identify key domains that would guide researchers and other stakeholders in making patient preference studies more useful to decision makers; and 3) detail important questions that would guide researchers conducting preference studies and those critically appraising them.

The framework spans 5 domains for conducting patient preference studies to increase the use and relevance of these studies to decision makers:

  1. The context – A complete understanding of how decision makers function, how decisions are made, and how studies on patient preferences may be received and used.
  2. The purpose – A clear articulation of how the study on patient preferences responds to decision makers’ needs and how the findings are expected to inform decision making.
  • The population – A thorough consideration of who the findings of the study will be applied to (directly or indirectly) and the intended and unintended consequences for those people.
  1. The method – A selection of method/s to study patient preferences that reflects the needs, wants, and capabilities of decision makers, patients, and other stakeholders.
  2. The impact – A proactive effort both to ensure that the study findings can inform decision making and to measure if and how they influenced decision makers and decision-making.

Dr. Heidenreich will introduce the session and moderate the Q & A session. Dr. Debekker-Grob will present the ISPOR Patient Preference Roadmap. Mr Low will present the patient perspective and Dr. Bouvy present the HTA perspective.

Conference/Value in Health Info

2022-11, ISPOR Europe 2022, Vienna, Austria

Code

115

Topic

Patient-Centered Research

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